CELIAC Archives

Celiac/Coeliac Wheat/Gluten-Free List

CELIAC@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Jack & Felice Cohen-Joppa <[log in to unmask]>
Reply To:
Jack & Felice Cohen-Joppa <[log in to unmask]>
Date:
Wed, 1 Jul 2020 17:32:13 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (19 lines)
<<Disclaimer: Verify this information before applying it to your situation.>>

I understand that about half of celiacs are also intolerant of dairy products but here is a puzzler:

Can any of you tolerate whole milk, but react to powdered milk?

I correspond with a federal prisoner who is biopsy diagnosed as celiac, but is nevertheless regularly served cross-contaminated foods or (during current COVID lockdowns) pre-packaged foods clearly containing wheat. 
Aside from this persistent issue that requires him to purchase extra commissary foods to sustain a minimum daily calorie count and not waste away, he just wrote:

"I explode every time the powdered milk arrives. I will not eat any more, and they keep sending cereal with powdered milk like empties I sent you,  only the carton milks have been acceptable, which are all plainly marked  G. F. & Un-modified milk product on each carton!!!" 

Any insights from personal or clinical experience are appreciated!

As a secondary question, I’ve been helping him document the food packaging and keep a copy of his log of meals and symptoms, and if any lawyer on this list is interested in some pro-bono work to get him moved into a FMC (Federal Medical Center for prisoners) from the regular FCI he is now at because they can’t provide his medical diet there, please let me know!

Jack
*Support summarization of posts, reply to the SENDER not the Celiac List*
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC

ATOM RSS1 RSS2