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>HI Andrea  :-)   I am relatively new to the list & I have no concrete
>validation that my son is a true celiac, or possible dairy intolerant as
>well. He has never had any official testing & I'm not even sure how to
>proceed with that.  He has been diagnosed with PDD/Autism. It was suggested
>to me by my Pediatrician(who is very thorough & holistic in his approach to
>treatment) that Travis may have this issue, as well, & it could be a possible
>causal factor in his developmental delay...(along with other unknown factors
>in Autistic Disorders) He mentioned that toxins can build up affecting nural
>function if digestion is poor, or at the very least he wouldn't be getting
>proper nutrition needed for optimum health. Basically he is a strapping boy &
>eats well (primarily loves bread & milk products of course!) I haven't seen
>him looking uncomfortable or in any pain from a belly-ache, but he has
>sensory issues & a high pain threshold (you should see the ear infections
>he's had without a peep)...so, I don't know if he just isn't registering it,
>& since he isn't talking yet, he also couldn't tell me how he feels anyway.
>He does have fequent loose stool & they are usually very smelly. Once we did
>try to keep him from Gluten for a month(off dairy as well) & we thought we
>saw a difference, but when we added stuff back into the diet looking for more
>changes there seemed to be no difference at that point. I am not sure how
>clean the diet was, though....it was extremely difficult to keep such a
>limited eater on an even more limited diet. (Like I said, he does eat well,
>but only a few foods with nothing new. With Autism changes are hard to
>handle) I guess my question is that I would love to be connected with other
>folks on the list with kids who are not only Celiac...but have Developmental
>issues as well. Are there many? Also, how to go about finding out for sure
>about Celiac, or casein intolerance. My only hope is that it won't be too
>invasive a proceedure. Travis is prone to tantrum at any physical
>intervention & it is very upsetting. If he IS celiac, I want to know ASAP.  I
>shudder to think that anything we are giving him to eat may be adding to his
>delay issue. Mother guilt is something I don't do well....  <sigh>    This
>has been a hard time for me and my husband, since Travis' Autistic dinosis is
>still so recent(under a year) He is 3 yrs old, attending a special preschool
>with additional speech therapy & occupational therapy services. We are doing
>all we can to help him connect & he is the joy of our life. He has been
>making some progress. :-) (We have had some success with Secretin Therapy...a
>pancreatic hormone) We also have a 1 yr old daughter & her stools are quite
>loose, too.. Of course an infant's system is so touchy, so who knows.  Her
>development is right on target, thank God. I'll be happy to hear form you, or
>others on the list, about anything I have shared.  I have no idea how to post
>this to the whole list, so can you forward it for me? Perhaps others will
>understand.
>
>Thanx - Ali   ([log in to unmask])