<<Disclaimer: Verify this information before applying it to your situation.>>
Hi and good for you for all you're doing. I can share that I was extremely
diligent about avoiding gluten when my son was diagnosed. However..much
later...up to 4 years later..I was finding out I was still "allowing"
hidden gluten into his diet!
Also, cross contamination is a likely concern (butter, mayo containers) as
well as "hidden" culprits...such as VANILLA? Seriously....some VANILLA has
GLUTEN?!?
Of course, today there is MUCH more information online but I wanted to
share our experience to ..hopefully allow you to avoid the pitfalls we went
through!
It took my son a LONG time to build energy..also..celiac can trigger other
autoimmune issues, I'd suggest asking for a thyroid check if your child has
low energy! (learn the signs of type 1 diabetes. These 2 often go hand in
hand).
My suggestion..ask your Dr. "When would we expect my child to be symptom
fee? If s/he is not, what would you do at that point? (tests etc..) "And
if those tests don’t provide information or an explanation what would you do
next?"
Ask this one more time and then ask to have it all done NOW!
This process makes them SLOW down and THINK about your child and what ELSE
could be going on.
Best of luck to you! Good job for reaching out for insight and guidance!
Your child is lucky to have you! Way to go!
Donda
Donda Combs, CAO (Chief Appreciation Officer & Appreciation Strategist)
Applied Appreciation
Leadership Training & Development
Utilizing the 5 Appreciation Languages to Strengthen Relationships and
Motivate Boomers, Gen X and Millennials
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Relationships Team Cohesion Employee Satisfaction Retention
Leadership Effectiveness
www.appliedappreciation.com
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-----Original Message-----
From: Celiac/Coeliac Wheat/Gluten-Free Children List
[mailto:[log in to unmask]] On Behalf Of Andrea Ihnen
Sent: Saturday, March 24, 2012 8:12 PM
To: [log in to unmask]
Subject: time frame for healing
---------------------- Information from the mail header
-----------------------
Sender: Celiac/Coeliac Wheat/Gluten-Free Children List
<[log in to unmask]>
Poster: Andrea Ihnen <[log in to unmask]>
Subject: time frame for healing
----------------------------------------------------------------------------
---
<<Disclaimer: Verify this information before applying it to your
situation.>>
Hello,
I'm new and have some questions...
My daughter was diagnosed with celiac disease (in November 2011) when she=
was 22 months. We immediately went GF and it's been almost 4 months now= .
Her main symptoms prior to the diagnosis were vomiting, recurrent illn=
esses, tiredness, irritability, weight loss, distended belly, and iron de=
ficiency anemia. There has been some improvement of symptoms over the la=
st few months, but most of these symptoms are still very present or at le=
ast to some degree. The most noteworthy is that she just can't seem to g=
ain any weight.
I've read that symptoms can improve immediately and that a lot of people =
feel significantly better and symptoms go away within weeks. I also know=
that each individual responds differently and that some people take mont= hs
(or years?) to heal.
My daughter receives therapy through Early Intervention because she also =
has Down syndrome. And her therapists are very concerned with how long i=
t's taking her to heal. She's having a tough time tolerating therapy bec=
ause she is always so tired and irritable and fussy. They think that we =
should be seeing quicker results since we've been GF for several months a=
nd they aren't satisfied with her doctor's "give it time" approach. They=
are strongly encouraging us to seek a second opinion in hopes of finding=
someone who is more willing to investigate why her symptoms haven't gone=
away by now.
I like my daughter's doctor. And I trust that she is providing the best =
care she possibly can. But I'm concerned about my daughter's little body=
and I feel pressure from her therapists to be more proactive with this.
So here is my question: How long did it take for your child's symptoms t= o
go away? Or how long for the symptoms to improve significantly? Do I =
need to give this more time, or should I seek a second opinion just in ca=
se?
Thanks for any help. I'm feeling very overwhelmed with all of this.
Andrea
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