<<Disclaimer: Verify this information before applying it to your situation.>> This message was sent to me -please reply to this mom in need >HI Andrea :-) I am relatively new to the list & I have no concrete >validation that my son is a true celiac, or possible dairy intolerant as >well. He has never had any official testing & I'm not even sure how to >proceed with that. He has been diagnosed with PDD/Autism. It was suggested >to me by my Pediatrician(who is very thorough & holistic in his approach to >treatment) that Travis may have this issue, as well, & it could be a possible >causal factor in his developmental delay...(along with other unknown factors >in Autistic Disorders) He mentioned that toxins can build up affecting nural >function if digestion is poor, or at the very least he wouldn't be getting >proper nutrition needed for optimum health. Basically he is a strapping boy & >eats well (primarily loves bread & milk products of course!) I haven't seen >him looking uncomfortable or in any pain from a belly-ache, but he has >sensory issues & a high pain threshold (you should see the ear infections >he's had without a peep)...so, I don't know if he just isn't registering it, >& since he isn't talking yet, he also couldn't tell me how he feels anyway. >He does have fequent loose stool & they are usually very smelly. Once we did >try to keep him from Gluten for a month(off dairy as well) & we thought we >saw a difference, but when we added stuff back into the diet looking for more >changes there seemed to be no difference at that point. I am not sure how >clean the diet was, though....it was extremely difficult to keep such a >limited eater on an even more limited diet. (Like I said, he does eat well, >but only a few foods with nothing new. With Autism changes are hard to >handle) I guess my question is that I would love to be connected with other >folks on the list with kids who are not only Celiac...but have Developmental >issues as well. Are there many? Also, how to go about finding out for sure >about Celiac, or casein intolerance. My only hope is that it won't be too >invasive a proceedure. Travis is prone to tantrum at any physical >intervention & it is very upsetting. If he IS celiac, I want to know ASAP. I >shudder to think that anything we are giving him to eat may be adding to his >delay issue. Mother guilt is something I don't do well.... <sigh> This >has been a hard time for me and my husband, since Travis' Autistic dinosis is >still so recent(under a year) He is 3 yrs old, attending a special preschool >with additional speech therapy & occupational therapy services. We are doing >all we can to help him connect & he is the joy of our life. He has been >making some progress. :-) (We have had some success with Secretin Therapy...a >pancreatic hormone) We also have a 1 yr old daughter & her stools are quite >loose, too.. Of course an infant's system is so touchy, so who knows. Her >development is right on target, thank God. I'll be happy to hear form you, or >others on the list, about anything I have shared. I have no idea how to post >this to the whole list, so can you forward it for me? Perhaps others will >understand. > >Thanx - Ali ([log in to unmask])