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Hi everyone!

I know back to school is here, so I wanted to send you all a blog post I
just published with some advice for helping your child to navigate the
start of the new year. I myself am not a parent, but I grew up with celiac
(diagnosed at 7 in 2003) and thus had to navigate school with the disease.
Here is the link: 

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Has anyone had a child with Celiac attend the 12U summer baseball tournament? How does food work? Were they able to accommodate safe GF food?

* All posts for product information must include the applicable country *

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I am in discussion with the Dayton area Boy Scouts about starting a gluten-free Cub Scout Den. My son is in second grade and is highly sensitive to cross-contamination. I am looking for other parents in the area who would like to join a Celiac-friendly gluten-free only Cub Scout den. Please send me an email if you would like to be a part of this. 

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Hi!  Can anyone recommend a site or source that has a current and reliable list of gluten free art supplies?  I'm not sure if the sites I've found are current or credible.  My daughter who has Down syndrome and celiac disease is starting preschool in January.  We've found that she is super sensitive to any type of gluten exposure / cross contamination because she only started improving on the new diet after almost a year when we finally removed her from daycare and completely eliminated gluten from our home.  I 

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My little girl (age 2) was diagnosed with celiac disease 6 months ago. She’s STILL not improving on the GF diet (which is a whole other topic) and her daycare provider (home setting) is no longer willing to provide care for her. She’s nervous that my daughter is being exposed to gluten through cross contamination at her house and she’s overwhelmed with the stress of trying to clean and control all the crumbs from all the other kids who are eating gluten or carrying it in from their own homes. 

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The Portland Maine Celiac DH Support Group has organized a Kids Group Parent Meeting to take place in Portland, Maine. We need parents input and help implementing a Cel-Kids Group.

The meeting will be held on Saturday May 12th from 10am-11am at Martins Point Health Care. 

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Posted for Tina Duncan <[log in to unmask]>

CAMP GLUTEN FREEDOM

WHEN:
June 26th 9am to June 29th
5:00 pm pick up

WHERE:
Camp Jameson
2001 Bridgeport Rd
Indianapolis, IN 46231

Camp Sponsors: Udi's, Schar & Gluten Free Living Now, Ltd.

Do you have a Gluten Free Child age 9-14?

If so…..
this is the camp for them to attend. We will also accommodate the gluten
free casein free diet and other food allergies and sensitivities upon
request. Parents need to let us know the campers specific dietary needs two
weeks prior to 

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Hello,

I'm new and have some questions...

My daughter was diagnosed with celiac disease (in November 2011) when she was 22 months. We immediately went GF and it's been almost 4 months now. Her main symptoms prior to the diagnosis were vomiting, recurrent illnesses, tiredness, irritability, weight loss, distended belly, and iron deficiency anemia. There has been some improvement of symptoms over the last few months, but most of these symptoms are still very present or at least to some degree. The most noteworthy is that she just can't seem 

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My daghters gi said by looking at her blood work that her nubers are
not that elevated so he is not certain that she does has celiac. So we
decided to go ahead with the biopsy. It should be some time next week.
I'm still waiting on the celaic panel blood work on myself and
my two other children, I did get my daughters CBC back and it
showed that she is slightly anemic, which is what it showed 6
months ago. They want me to start her on iron 

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If you have a postive blood test is the biopsy really necessary? Other than another positve test, what else can the biopsy show you? We head to the gi Dr. tomorrow so I'm sure he will answer all my questions but i was curious what your thoughts are? Thanks
Robin 

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(I posted this yesterday but it doesn't seemed to have gone through, sorry if it duplicates)

I wanted to say thank you to everyone for being so helpful and caring. All of you really went out of your way to welcome me to your group---thank you. 

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Hello my daughter just had positive blood tests for celiac. She sees her gi on Tuesday.
I have two other children that I am also going to have tested.
Do all of your children in your family all have CD? Do all of their symptoms seems to vary
in severness? Do they have other health issues? Sorry for all the questions
I'm just trying to figure all of this out. Thank you. 

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Hi everyone,

Yesterday, my 10 year old daughter had a school activity (which I didn't know about) where they baked using flour. I know that she didn't eat any of it, but she seemed to have a reaction anyway. Has anyone else found that just being around flour and breathing it in possibly causes a reaction? 

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I recently heard that cinnamon honeycombs from Post cereals are gluten free. They say manufactured on equipment that processes wheat. Does anyone know if they're really gluten free?

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All, if anyone can recommend a Pediatric GI doc in St. Louis who is
sensitive to and understands Celiac, I would really appreciate it.

So far, I have been to TWO docs who have wanted me to put my daughter on
gluten for 6 weeks then biopsy in order for them to 'confirm' her celiac
diagnosis. Previous biopsies did not prove celiac but a strict GF diet has
made her healthy. When she eats gluten, she vomits, has blood in her BM,
gets rashes, etc. I am unwilling to take 

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Tricia,

My daughter's gastro doc says yes, symptoms can change after removal
from the diet. My daughter was gluten intolerant as well as 'allergic'
to milk. When we did a milk-challenge after a year free of milk, her
original symptoms, vomiting, weight loss, diarrhea, did not re-appear.
Instead, she got allergic colitis which took six months to get diagnosed
because we had no idea it was the milk causing it until the colonoscopy
showed it. 

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Hi -

We put our son on a gluten free diet at age 16 months after months of GI
symptoms and weight loss. His blood work was negative and we decided not to
do an endoscopy because he was so young and so underweight. Once he went
gluten free his GI symptoms resolved and he finally started to gain weight.
That was 2 years ago. 

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We live in Austin, but will go anywhere in Texas (Houston or Dallas or even
a different state) to visit a "forward thinking" pediatric endo who will at
least converse about CD, related delayed bone age and the need for growth
hormones to help with catch up growth. Thank you; recommendations are very
much appreciated! 

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I wonder if anyone has experienced this with their child. Mine was
diagnosed May of 2008. His symptoms were gastrointestinal, as well as short
stature. After we started the diet, the gastrointestinal symptoms went away
almost immediately. We were anticipating big "catch up" growth but that has
not happened. Granted we had a few "mess ups" with the diet early on, but
those have gotten much better. Last TtG-IgA was 3, the best yet, though
that was 6 months ago (we are due for one next week.) 

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A few months ago someone asked about honey kix and was told that they're gluten free. Does anyone know about Berry kix? The ingredients are nearly identical, but there are coloring additives.

Thanks,

Devorie

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Hi All,

A friend of mine's daughter is having a gastro problem - possibly Celiac.
She is moving next week near Offutt AFB in Nebraska.

Does anyone have a good recommendation of a Pediatric Gastroenterologist?

Regards,
Laura

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

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My 3 year old son was just accepted to a 4 star daycare. This is by far my
biggest challenge with dealing with childcare facilities on my sons food
allergies. They are required to meet Department of Human Services guidelines
and Child and Adult Food Program guidelines. 

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Can people share favorite protein bar recipes that are GF and peanut
free and that a 4 year old will eat? That means it can't "look
funny." Even better if it has chocolate from my son's point of view!
My son really likes the Andi bars, particularly the chocolate ones,
but we are fed up with the irresponsible business practices of the
company and our local health food store will also no longer deal with
them. He misses his protein bars and I'm willing to cook but I need
some 

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My 7yo was diagnosed last May and his school has been great about taking
steps to keep him safe. However, we had an exposure last week from a
situation nobody had thought of before. In gym class(after lunch which is
eaten in the gym), they were doing the crab walk and other activities on
the floor. Then he went to music. Then he returned to his classroom where
he accidently slammed his fingers in the desk. Then he sucked on his
throbbing fingers to ease the pain. Ten minutes later 

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Hi All,

I recently called Knudsen to inquire about the natural flavors in their juice
boxes. The juice boxes I called about had no gluten, however, their Sensible
Sippers (mini juice boxes for toddlers) have gluten. I looked at the label in the
store today - it must be within the "natural flavors". 

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Does anyone know if Celiac and Allergies are related? I'm thinking both are
immune system issues.

My child with Celiac has had 2 hive / swelling reactions to amoxicillian (and
something else). My child also has food allergies too. I'm debating on
whether or not we should go for environmental allergy testing. We were
recently in the emergency room with a badly swollen eye - diagnosed as
allergy conjunctivitis. 

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Everyone has said the same thing: Dairy free/ Casein Free. So I am going to
do it. I cant believe it could end up being something this simple after all the
doctors and test we have been thru. So thank you all very much. I WILL
POST IN A COUPLE WEEKS TO LET YOU KNOW IF WE SEE A DIFFERENCE. 

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I've received enough private emails about this to last me a lifetime. I'll
apply to my situation as I see fit. If posts to me regarding this topic
could stop, I'd appreciate it.

Regards,

JHM

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

<<Disclaimer: Verify this information before applying it to your situation.>>

Our local health food store pulled all of sami's products after questioning them about preservatives in their products that were not listed.
There was a test done that revealed that there was a high percentage the preservative.
Sami's says no --------------Test says Yes
We stopped buying due to the lack of confidence in the truthfullness of their practices.
Kyle 

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I posted this on regular celaic site also but wasnt sure if everyone checked
both so I am posting this here also. My daughter is now six and has celaic for
past yr and diabetes since August. She has two conditions that we cant find
any releif for. Congestion and stomach aches. She goes to a GI and Endocrin
Dr. We also have Been thru ENT, Diagnostic Center, Allergy and Immunology.
No one can find a reason for the problems or relief for the symptoms. We
havent given up but 

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Hi Judi,

I just read your posting to Cel-Kids.

I was concerned when you mentioned Sami's Bread, particularly flax and millet.
Awhile back there was a lot of controversy about the breads at Sami's as testing revealed very heavy gluten contamination on independent testing. It is not a dedicated facility and significant gluten was getting into their products. 

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I have gathered a list of public school districts that serve a complete GF lunch
for celiac students. Since I had many more respond that they wanted to also
have this list, I am posting it to the listserve.

Dracut Public Schools - Dracut, MA
West Bend School District - West Bend, Wisconsin
Rochester Independent School District – Rochester, MN
Belchertown Public Schools – MA
Port Washington Saukville School District – Port Washington, Wisconsin
Fairfax County, VA (County-wide school district)
Ventura Unified School District - Ventura, CA
Millard Public Schools 

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I would like to gather a list of public school districts (K-12)that already
provide a gluten-free lunch. I am starting the process of getting my son's
school district to provide GF lunches with a 504 plan and realize it may be
very helpful for them to know what other school districts they could model
after as they seem totally in the dark when it comes to GF.
If you child's school serves a GF lunch, please send me your school districts
name (not the individual school name) along with city 

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I have been reading all the 'starting school' posts with interest. My son was diagnosed at 20 months old and will be turning 17 years old in a month. He is very sensitive to any gluten ingestion. We know because he was given a medication that had been gluten free and was relayed to us by the drug company that it was still gluten free. We received a follow up call (too late) from the drug company telling us not to take the medication because the formula had changed and 

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Does Walmart carry any cereals that are truly gluten free?

Thanks.
Barbara

* Please provide references to back up claims of a product being GF or not GF *

<<Disclaimer: Verify this information before applying it to your situation.>>

By looking at the boxes of honey kix, chocolate lucky charms, and berry berry kix, they appear to be gluten free, I have heard that general mills won't claim that they are gluten free, anyone have any experience with these? It would be nice to expand our cereal varieties,
thanks,
Jen 

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I have two daughters in elementary school who have celiac. My oldest was diagnosed in the middle of first grade and at the same time her sister was diagnosed while in preschool. I disagree about not telling the principal, etc. Our school principal has been amazing. He set up the 504 plan for my oldest (and my younger daughter when the time came). He held a meeting with the entire staff and I spoke at it explaining to the staff exactly what celiac was and what I needed them to 

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If you have a 504 plan the teachers are suppose to read it and follow it.  And you can simply ask if he/she has read the 504 plan.  If not, then you can explain it more if needed.

---------------------- Information from the mail header -----------------------
Sender:       Celiac/Coeliac Wheat/Gluten-Free Children List
              <[log in to unmask]>
Poster:       Maureen O'Grady <[log in to unmask]>
Subject:      Re: kids starting school

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I'm thinking the mother needs to let everyone know she has the problem, just as you would a diabetic child, so that this child can have the best opportunity not to be exposed to gluten.  To me, it is worse to be celiac than diabetic, and I'm Type 1, because with sugar infractions you can give more insulin to get it down.  However, my understanding, because no one in my family is celiac diagnosed, is that celiac patients have to go months to be free of the effects of gluten 

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Quote:
Well, the school nurse needs to know because it is her job to educate the teacher and the other school staff about the issues of the children enrolled in the school. The principal has overall responsibility for the school, so he/she definitely needs to know and to able to take appropriate action if there is a problem. They need to know because the child's school experience is not limited to what happens in one classroom with one teacher. 

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I want to thank everyone for the information...I too will be in the same situation soon. My son will only be 3 starting school, so letting all adults know the situation is going to be very important...while I can (and will) teach my son the issues, he will not be old enough to truly know what to eat & what to avoid the adults around him will need to know to keep those things away. 

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Dear fellow parents,
My 6 year old son was diagnosed last August with celiac disease, and since the start of September we are on a strict gluten free diet. Somehow he did not react to it as fast/as much than I hoped. He still is not growing much, gained hardly any weight, and in the middle of december got a rash which looked like dermatitis herpetiformis. Since three weeks I changed the diet again to exclude all grains and starches (Specific carbohydrate diet), and his stool now at least looks 

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I need some tips on how to communicate and what to ask at school about a child being a celiac.  My child starts kindergarten next year and I am not sure what questions to ask or who to talk to (principal, teachers, school nurse or all?)?  I know I can explain what celiac is, what it means etc -- but I need some school specific advice.
 
Thanks for your help.
Cass 

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Hello,

I am going to try and make my own chicken bites tomorrow for my children. I
didnt know if anyone had a speciific recipe or advice.

I was going to cut up the chicken in to small peices, crush potato chips in
a bag with a little pepper and coat each peice well and bake on a baking
sheet. 

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The Peninsula College of Medicine and Dentistry just issued the
following news release:

'Sunshine vitamin' link to cognitive problems in older people
Vitamin D linked to cognitive impairment

Researchers from the Peninsula Medical School, the University of
Cambridge and the University of Michigan, have for the first time
identified a relationship between Vitamin D, the "sunshine vitamin", and
cognitive impairment in a large-scale study of older people. The
importance of these findings lies in the connection between cognitive
function and dementia: people who have impaired cognitive function are
more likely 

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Has anyone sent their child to Camp Celiac in RI? If so, what was your
experience. I am think of sending my children.

TIA.

Sara, CT
[log in to unmask]

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

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Hi All,

I searched high and low about 1.5 years ago to find a GF vitamin D
supplement for my toddler. We found Drisdol drops - by Sanofi. We are out
and I just discovered that Sanofi is no longer making these drops.

My child needs 1000 IU per day - so a multiple vitamin won't work. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Thanks to everyone who has responded. 42 responses and counting so
far. Universally, all people (adults and kids) are getting more
sensitive the longer they have been GF, so her experience is
definitely typical. Some get extremely severe reactions and some
still only have mild reactions, but more than before they got an
actual diagnosis. 

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My daughter was diagnosed with CD in December 06 through biopsy. She
was not having any symptoms (except she was small and I thought she
had a big belly, but everyone else told me I was silly and it was low
muscle tone). Because she also has Down syndrome, we tested her for
celiac and it was positive. I remarked to the GI that I was surprised
because she never acted like her belly hurt or anything. He said that
maybe she felt bad all the time and she didn't 

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I am shocked. A public school (and most non-profit private schools)
have no choice but to provide a gluten free diet for your child - it
falls under federal law. You need to call the state board of education
and speak to them. If they receive any federal funds for their lunch
program they are risking losing it all if they don't. 

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Hello:

I am trying to get gluten free lunches in my local school district in Colorado. The district has asked me to find out other districts that have done this. Have any of you been successful in making this happen or are you aware of school district that have been accommodating? 

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Hi Everyone.

Does anyone know which dairy foods have more casein than others? For
example - does skim milk have more or less than whole milk?

Regards,
Laura

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

My 8 year old daughter with Celiac Disease was recently diagnosed
<<Disclaimer: Verify this information before applying it to your situation.>>

Hi, My 8 year old daughter with Celiac Disease was recently diagnosed with Diabetes Insipidus and growth hormone deficiency.  Does anyone's child with Celiac Disease have either of these disorders?  thanks, Amy Strother

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

<<Disclaimer: Verify this information before applying it to your situation.>>

From: Margaret Weiss Masiello, RD
Clinical Coordinator
The Kogan Celiac Center
Saint Barnabas Health Care System
(973) 322-7260
(973) 322-7528 fax
[log in to unmask]
www.koganceliaccenter.com

The National Foundation for Celiac Awareness (NFCA) is seeking case
studies
of women who experienced infertility issues (trouble conceiving,
miscarriages, birth defects, still births, etc.) prior to a diagnosis of
celiac disease, and then after receiving a celiac diagnosis AND going
gluten-free they were able to
successfully conceive and maintain the pregnancy to term. 

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Hi, My darling mother-in-law just sent us some Halloween lollypops, all the
way to New Zealand!

They are round chocolate on a stick, not sure if they have fillings or not
as we haven't tried them yet.

They have little Halloween characters on each of them. 

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Hi All!

I partly need to vent. But, I'm also looking for advice on how to handle.

Included in my child's school fees, breakfast and snack are baked into the
price. Of course, there are no gluten free options. And even though my child
won't be consuming the food, I need to pay the full price. Ok. I'm doing it. 

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Hi All!

I'm getting my daughter (with Celiac Disease) ready to go to school. The
school likes to make their own play dough and would like the class to all use
GF play dough.

They make play dough often.

Does anyone know of a VERY cheap source for rice flour (or other cheap GF
flour) to use for play dough? I'm willing to buy in large quantities to get an
even cheaper price. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Hi All,

Sorry this took so long - I received a lot of great ideas and some very
creative ones! I actually compiled a "raw" list of responses from everyone
that came out to 19 pages long. I tried to attach the document to a message
and the message was rejected. The message was also too long to cut and
paste into this message. So, I summarized all responses. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

http://tattooswithapurpose.com/ordertattooshere.html

If you scroll down you will see a temporary tattoo that says "Gluten free".
I think this would be great to put on young children that cant tell yet if
something would have gluten in it and for other people to be aware. 

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I have a 2 year old boy and a 3 year old boy. Neither are potty trained yet.
I tried in December (before we found out they both are celiac) with both of
them and for my eldest it seemes to be going well but he was pooping 5x a
day and that was a big problem so I just stopped the training. my youngest
was up to 10 times a day. So in Januray we found out they have gluten
allergies and ever since then they have been down 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Hi
We'll be vacationing in Estes Park Colorado, flying into Denver and driving
through Boulder CO. Could anyone recommend a store where we could pick up GF
groceries on our way. Thanks for your help.
Peace
Amy G - near Chicago, IL

**************Gas prices getting you down? Search AOL Autos for
fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut00050000000007) 

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I have two daughters with Celiac. My oldest was diagnosed when she was 8. She is 15 now. Lately, she has been ignoring
the gluten free diet and eating things she should not. She doesn't have the same reaction as a teen she did when she was
younger and thinks that now she's grown out of it. I know that teens sometimes do this because of adolescence and I also know that
the reactions will come back as she gets older and she is still doing the damage. I'm very 

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Hi Everyone!

I'm sorry to ask this question again - but the last couple of times I saw this
question asked, I asked for a summary and never saw anything. In case I
missed it - my apologies.

I'm looking for lunch ideas (elementary school age) for kids with Celiac. The
school has no possibility to heat things up so I either need to send things cold
or in a thermos. 

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Hi Everyone!

My 4 year old daughter was in an ice show this past weekend. There were
multiple shows. I was nervous about her being alone in the locker room
because of her Celiac condition. I was allowed to work in the locker room
some of the shows in order to help make sure she would be ok - even though I
was assured that there would be no problem. 

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Hi-

I was jsut reading anohter listmates e-mail about her daughter and nerve
damage.

Ryan aften wakes up and says his feet hurt. But i dont think he knows what
the word "numb" means when I ask him.

Ryan has had lots of bloodwork done in the past year and I am wonderign are
there any other blood markers that might be high or low if you have nerve
damage??? 

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<<Disclaimer: Verify this information before applying it to your situation.>>

So my question is: Does anyone know of any popsicles that are NOT gluten
free? Its been tough latley being summer and severasl moms have brought
popsicles to the pool for the kids. Often the popsicles are losse with no
labels

I always read every label before givign my son anythgin and often call the
company of any new prodcuts to verify the gluten free status. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

I posted yesterday about a blood test and I just wanted to thank everyone
for their replies. I have learned a great many things and I wanted to make
another post for some people that may have the same questions.

The answer to my question of do you need to be eating gluten to have the
blood test done is, YES! You could have a false negative otherwise. Many
people take this blood test yearly to make sure they arn't having any gluten
snuck into their diets by toothpaste, etc.
 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Well we finally got into see my 2 year olds Doctor yesterday and I told him
all of my child symptoms and that I have had him on a Gluten free diet for 3
months and he said "well it looks like he's Celiac." I then asked him what
tests need to be done and he said "none, why put him through all the testing
when you already know the problem is?"
Well I said "so we know for certain and for the tax refund you can get for
buying 

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<<Disclaimer: Verify this information before applying it to your situation.>>

My son is 3 years old and his teacher jsut called me crying and said she
accidentally gave ryan 5 animal crackers.

UGH!

does anyone know of anything to do to lessen his side effects or anythign to
help with cramping or any advice?

This is the first time in 2 years he has gotten gluten so I dont know how he
will react- if at all? 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Okay so I am adding another mystery symptom on to my list for my 3 1/2 year
old son- Ryan. I don't think this has anythgin to do with Celiac but I have
gotten good advice/info in the past so thought I would put this out there
too- in case anyone else has experienced this. 

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Hi All!

I need to give my child 500mg calcium supplement daily. Does anyone have a
recommendation of something that a small child will eat (doesn't taste like
chalk) and is of course GF?

Regards,
Laura

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

<<Disclaimer: Verify this information before applying it to your situation.>>

Hello -

My son is 23 mos and recently diagnosed with celiac. In Dec he was on an
extended course of antibiotics (18 days) and since then has been having
episodic diarrhea with mucus in it. At first I was worried he was getting
gluten somehow but I am starting to suspect he has candida. We are giving
him large doses of probiotic and it is helping somewhat. Has anyone else
ever experienced this? I have read online that people with celiac can
sometimes have this problem. 

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Hello- We are going to a party this afternoon. I will check the label when
we go but jsut wondering if anyone knows if popsicle brand spiderman
popsciles are gluten free?

thanks!

* Support summarization of posts, reply to the SENDER not the Cel-Kids List *

<<Disclaimer: Verify this information before applying it to your situation.>>

Hi Everyone!

I would like your opinion regarding a child with Celiac Disease.

In the situation that children are being invited to birthday parties and to
friends houses, etc... Do you think (in the child's best interest) that it is
better to:

1. Openly explain to others that he/she has Celiac Disease? And explain that
he/she cannot eat certain foods (and why he/she will come prepared with
their own food)? 

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My daughter has celiac and as of now we were told no other problems. We
went thru numerous test before we finally found out she had celiac. She is
extremely tall very healthy except for an excess of mucus wich we thought for
years were allergies. Finally when no allergy medicine releaved her symptoms
and we went to prob. 5 diff. dr.s did some one check for celaic. Her mucus is
gone no more ear and sinus infections. She cleares her throat still alittle but
Im nervous because I havent 

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Okay i will try and keep this as short as possible.

I jsut got hoem from the hospital with my 3 year old son so am very sleep
deprived and not all with it so hope this all makes sense.

So Ryan is almost 3 1/2 and was diagnosed with Celiac Disease 18 months
ago and has been on a gluten free diet and doing well.
This past summer he complained of his legs being tired from walking often
and I thought he bruised easily. He was slightly anemic. 

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Can anyone confirm that childrens benadryl (dye free) and childrens motrin
is gluten free??

My 3 1/2 year old son has been taking it and tonight he seems to be out of
it in his bed and today his tummy hurt and his feet hurt and he was tired
from walking??? and gassy? and I thought well...? maybe the medicine?
But he had a fever so maybe it is just related to that or a virus? 

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http://magickhand.googlepages.com/GFCandyList.pdf

* General celiac discussions should be sent to CeliacLISTSERV.ICORS.ORG *

<<Disclaimer: Verify this information before applying it to your situation.>>

I received the below e-mail from my ROCK group so thought I would pass
along...

<<Disclaimer: Verify this information before applying it to your situation.>>

Does anyone know can a defiency in lactase enzyme cause the villi to be
blunted? My 3 year old son jsut had an endoscopy and it showed the villi
are blunted.

My son has a lactase deficiency and has been gluten free for 18 months. We
took him off lactose for the first 6 months after being diagnosed but then
added it back and he seemed fine for 6 months. 

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Hi Everyone,

My daughter needs a GF Vitamin D Supplement. She needs to take 1000 units
per day.

Good ole CVS Pharmacy told me that they couldn't find a GF vitamin D
supplement.

Does anyone know of a specific brand that is GF?

Regards,
Laura

* Cel-Kids Web Page: http://www.enabling.org/ia/cel-kids *

<<Disclaimer: Verify this information before applying it to your situation.>>

Does anyone have a child with Celiac that asks/insists to drink sometimes 12-
14 ounces (usually milk) and then throws it up almost immediately? My 4 year
old child will drink this much in a 30 minute period and then vomit.

While it does seem like a lot - I know that I've never thrown up after drinking
a little too much volume. 

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Has anyone used this wheat free and gluten free dough (playdoh) by
colorations?
do the kids like it? I was thinking about gettign soem for my sons 3 year
old class room?

http://www.discountschoolsupply.com/Product/ProductDetail.aspx?product=7566&mlc
=

thanks,
'suzanne

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

<<Disclaimer: Verify this information before applying it to your situation.>>

Hello-

My son is 3 years old and going to preschool this year. I am very nervous
about sending him and the gluten issue. I know play doh has gluten in it
and some of the pastes and of course any art projects which uses food.. I
am wonderign what else i need to watch for: stickers? crayons? paints?
Should I get a list of all the products used and call the companies?? 

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Hi All,
I wanted to share with you Ron Hoggan's new DVD "Smarten Up!" This DVD was
extremely helpful to me in understanding the behavioral issues and learning
difficulties related to gluten intolerance. I have a 6 year old daughter
that has been GF now for 6 months and exhibited much of the symptoms he
refers to in his DVD. We are now seeing much improvement. His DVD gave me so
much hope that within the next 6 months even more improvement is forthcoming
on gf diet. Those of us 

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Are parasites common in kids with celiac disease?

My 3 year old has been gluten free for a year and just tested positive for 3
parasites
dientamoeba fragilis, endolimax nana and entamoeba hartmanni

He was having tummy aches- now we know why.

thanks,
suzanne

* General celiac discussions should be sent to CeliacLISTSERV.ICORS.ORG *

<<Disclaimer: Verify this information before applying it to your situation.>>

What do you do for your kids to help them through any gluten accidents? My
four year old was given a whole hot dog bun at Parent's-night-out last
Friday (I won't go into the fact that we mentioned and left notes
emphatically stating he cannot have anything made with wheat, etc....).
This is the first time he has had such a large amount since taking him off
of gluten. Tylenol is helping with the muscle aches, but is there anything
else I can do for him? 

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Hi,

I would like to know of any summer camps for children that are sensitive to
celiac kids needs. Of particular interest are any camps located in the
southeatern US. Thank you.

Gail in SC

* Cel-Kids Web Page: http://www.enabling.org/ia/cel-kids *

<<Disclaimer: Verify this information before applying it to your situation.>>

Thanks for all the replies. I did turn up camps
I had not learned about previously. It is
interesting that these camps cover the East
Coast, the West Coast and places in
between. Some people sent information about
camps that were sensitive to the needs of celiac
kids. But I was compiling data on celiac
specific camps. So, these other camps are not
listed. But given the number of celiac specific
camps and those that are sensitive to the needs
of celiacs, our kids have a lot of great camping 

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Hi all!

I am preparing information about summer camps for my support
group. I have data for the 2 GIG camps, one at Camp Kanata in NC and
one at Camp Sealth in WA. I have the Great GF Escapes camp in TX. I
have Dr. Fine's camp at Camp Shaver in NM. And finally I have Camp
Celiac in RI. 

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There is going to be a gluten-free family camp in New Mexico this summer! I attended last summer with two of my children and had a great time. Both adults, children, and teens would enjoy this camp.

All the details are available at www.intestinalhealth.org/camp, but I thought I would post the highlights: 

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My son has been diagnosed with celiac disease in Oct. 2006. I have learned
alot by searching the internet, but would not mind some information from
mothers with children in the same age group with celiac's. Our Dr's are not
very helpful. They do not have much knowledge on this and it seems that I
am the one that has to teach them. My children have been very sick for 3
years and now when I take the one in with CD I am asked what meds he can
have. 

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Hi , This is my first post. My daughter cannot have gluten and we just
discovered allergic to milk, eggs, soy and peanuts. Her birthday is Jan. 4
and don't know what to do for a cake with all the additional restriction.
Anyone have any ideas or know substitutions for milk and eggs that aren't
derived from soy? Ant other yummy dessert would help also. In addition was
wondering about gf shampoo and conditioner. Looks like Neutrogena has a few
but not sure if the list I have is recently 

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My original post:

I have been concerned about my 12 yr. old's moods, fatigue, and lack of concentration even though he has been on the gf diet for 2 years. Recently I read that may be a vitamin b12 deficiency. The vitamins he currently takes have very little b vitamins in them.
I take 500 mcg of b12 everyday- is that too much for a 12 yr. old? 

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I have been concerned about my 12 yr. old's moods, fatigue, and lack of concentration even though he has been on the gf diet for 2 years. Recently I read that may be a vitamin b12 deficiency. The vitamins he currently takes have very little b vitamins in them.
I take 500 mcg of b12 everyday- is that too much for a 12 yr. old? 

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Hello,
I suspect my 21 mo. old daughter has a gluten intolerance or sensitivity, or perhaps celiac disease. It
runs in our family. She developed runny stools about 3 months ago, and though she is still growing,
she has very little desire to eat. Then, about 6 weeks ago, she developed hives which she has had
every day since. I've noticed that when she ingests wheat, her hives get worse. I have so many
questions! First, I had my daughter's stool tested by Enterolab with their Gluten Sensitivity Stool
Test. 

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My son also had poor growth even after removing gluten/wheat from his diet. We began working with a nutritionist who opined that he was enzyme deficient. Our GI confirmed that this was a possibility. My son has made wonderful progress with the use of enzymes and vitamin supplements -- all of which were approved by my pediatrician. The name of our nutritionist is Kelly Dorfman and she is located in North Potomac, Maryland. She has a website. Laura 

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Lesli,

I was just catching up with the Cel-Kids list group and saw your post. There could be other issues
that are preventing your son from normal growth. I just did a Google sear ch on "slow growth in
children" and I am sending you information from just the first site that came up. 

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I am a mother of a preschooler with Celiac Disease. I just learned I am
pregnant again and wonder if there is information on whether I should try a
GF diet while pregnant to help the new baby? I consider this because my
preschooler suffered and didn't grow much in the womb (she is a twin). I
also felt like it was the pastas and wheat products that made me violently
sick the whole pregnancy. Anyone have information? 

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Hi,
Our son was recently diagnosed with gluten sensitivity as well as multiple food sensitivities and elevated antibodies to yeast which apparently can go along with the gluten sensitivity. The food and yeast tests were done by Enzyme-Linked Immunosorbent Assay (ELISA) . Previous skin scratch tests were negative for food allergies 

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Hi.

I'm somewhat new to this board and have a question. My 5 year-old son was
diagnosed with CD after a blood test and not having information from the
pediatrician prior to the GI appointment, we took him off all gluten for
about 2-3 weeks. He made an amazing recovery -- rapid weight gain, no
abdominal pain, considerably less distention, less irritable, happy, and
energetic. It was just amazing. After seeing the GI, we put him on gluten
powder for 4 days which resulted in a positive biopsy. Now that 

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I am sorry it has taken me so long to summarize but I wanted to have a resolution to report. I had asked if anyone had any advice/knowledge about getting the school district to pay for my son's GF pizza which they prepare for him (on a seperate, clean baking sheet, using dedicated utensils I provide). In the past I provided the pizza AND paid for a school lunch the days he ate them. 

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Hi: My 5 year old son has Celiac Disease. He will be going to Kindergarten next year. His Pre-School years in the same school were very stressful. We've had quite a few "accidents". I have a meeting with the Principal next week and want to stress how important it is for everyone to be more careful. I feel like I am exaggerating when I explain what Celiac Disease is. Can anyone explain the 504 in a simplified version? Thank you for any help you can provide. 

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Is anyone aware of a Celiac kids group in Vancouver, BC or Lower Mainland, BC? I have a 7 year old who would probably like to meet others in his age range who also have Celiac. Thanks.

* Support summarization of posts, reply to the SENDER not the Cel-Kids List *

<<Disclaimer: Verify this information before applying it to your situation.>>

My 7 year old son and I have recently been diagnosed w/ Celiac. I am looking for some easy hot meals I can drop off for him at school and other comfort food products and snacks that I can pick for him from the grocery store. I live in Vancouver, BC Canada. Is there anyone living in Vancouver or surrounding areas that have suggestions. It seems the Thai Kitchen soup mixes are gluten free. He enjoys these. Thanks in advance. 

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Hi, My Family all just had stool tests done by Entero Labs,and they came
back showing that my Husband, and 2 sons (6yrs & 3yrs) are all gluten
intolerant. My 6 yr old has been tested for ADHD and given that
diagnosis, and I am really hoping that removing gluten from his diet will
help him with it. We(the whole family) have been off Gluten since 1/20/06
and I am wondering how long it take to see some results. They are very
energetic, and run circles around the house every 

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On Wednesday, the Celiac related lists at StJohns will be moving to a
new home.

We have been hosted at StJohns since November 1994 as part of their
outreach program to the community. The issue of supporting the Internet
has been an annual item of discussion for the last few years. Recently
the University announced that all StJohns list would stop on 1 February
2006. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

On Wednesday, the Celiac related lists at StJohns will be moving to a
new home.

We have been hosted at StJohns since November 1994 as part of their
outreach program to the community. The issue of supporting the Internet
has been an annual item of discussion for the last few years. Recently
the University announced that all StJohns list would stop on 1 February
2006. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Thanks to all 25 people who shared their experiences with this issue of
behavior/mood problems in kids with unrecognized Celiac. Everyone said
"YES" to my question about whether my grandson's mood shifts and temper
tantrums could be related to gluten ingestion. In fact, according to the
25 responses to my question "irritability is the hallmark sign of Celiac
disease in children." 

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Thank you so much for all the support,advise,and ideas I recieved I have a few to try. It was a great help realizing that I am right doing what I am to look after my children and knowing that most of us trying to be gf are in the same boat, that theres a lot of people that just don't get being gf,and most support comes from the internet. I think that 90% of mother in laws are the same. I feel greatly stronger and more determined to do whats 

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I've had similar problems with people just not understanding that children can not have gluten in their diet mine is my mother in law my children have been gluten free for about 1 year and I talked to her about it explained the seriousness gave a short list of foods she could give them. She still ask me if they can have gluten yet and insists on giving them foods they are not allowed. She loses every list I give her and says well I didn't know if they were 

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Hi Jeannie

my daughter who is now 8 years old has been gluten free for about one year. Before that she was a very collicky baby wouldn't have any solids until about one then had a number of emotional, learning and behavioural problems.She was an uncontrolable child who had bad mood swings. She has a allergy to gluten found through a blood test. Within one week of being gluten free we saw a difference in her behavour all the moods emtional ups and downs,bully her sibblings, problems of sleeping bloated 

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Hi:
I had a horrible incident with my son's pre-school.

His class had a Thanksgiving Feast and wanted to make food to bring home. The teacher contacted me and I ordered some gluten-free mixes for bread and cookies. My son came home with a beautiful box of banana bread and other treats. He was so proud of what he made and couldn't wait to taste it. 

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My husband and my two oldest daughters are all being looked at for
possible Celiac, my husband because of long term irritable bowel
syndrome which has responded to a gluten free diet, one daughter from
chronic inability to gain weight and the other for many stomach/allergy
and ADD related issues. All have been to many regular and alternative
doctors with no or limited success. 

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My 7yr. old son still wets the bed. He is only 38lbs, 42" tall. He was
diagnosed 2.5 yrs ago and has been GF, is healthier but with no growth
catch up. I think his body just hasn't grown enough to get past this
issue, but the growth seems so slow! The Dr.s say just wait for puberty
and he should have a growth spurt. I am not satisfied with waiting!
Wondered if anyone else can shed some light on this? Thanks. 

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I just had something brought to me by my mother - sorry if I am slow
catching on, but I figured if I am slow - some of you may be too. Pass
Over! My mother went and bought my daughter food from the jewish bakeries
in her city. Delicious! Fantastic! Gluton Free! 

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I'm looking for a gluten free bread receipe.Can you just replace the normal flour with gluten free baking mix?Or do you need a special recipe(I've made the flour mix up myself using rice flour, potato starch,tapioca starch).Any help would be apreciated, with thanks Olivia. 

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hello, I'm needing some help in finding a baking mix that is gluten/wheat free, but I need a big bag of it so I can make bread,biscuits,cakes,pizza bases etc for my 3 girls.I would properely need about 5kg a week.I can't find any that is a reasonable price.Does anyone know of somewhere I can get some? I live in Hamilton N.Z. With thanks Olivia. 

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Thanks for all the responses to my fruit snack question...looks like there
are a lot of good choices out there...I've grouped them by manufacturer
with the number of responses in ( )....only consistent bad ones was Brachs
(so I would stay away from them) since they are not on dedicated lines..... 

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Hello listmates,

Looking for recommendations for any fruit snacks (you know, those
processed little bits of jelly candy in 'fruit' flavors) that are gluten
free....my son LOVED them before he was diagnosed 6 months ago...he is now
doing great and would love to add something back into his diet that is
safe...but I am not sure if any are safe... 

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First, sorry this is so long, I was unable to send it as attachments so I pasted everything into this e-mail.

I did not receive any copies of formal 504 plans. I am including a draft of the 504 plan accommodations that I am requesting for my daughter (see bottom). Please understand that has not been put into final form and may not be formatted correctly for a 504 plan. If anyone does have a formal plan I would still love to compare plans. You can go to www.allergysupport.org and 

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Hi all. My son is now 6 years old and was diagnosed with Celiac 2 years ago. He's been having a great year and has been very positive about his life for several months. However, last night, 5 minutes after putting him to bed, he walked into my room and said "Mom, I don't want to be gluten free anymore". When I asked him about it he told me that he misses eating Goldfish and that at snack time in kindergarten all his friends are eating them....he remembers how much 

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hi all!

Our next Central NJ ROCK (Raising Our Celiac Kids) meeting will be held next
Thursday, April 7th at 7 pm at the Monmuth County Public Library, Symmes Road,
Manalapan, NJ. We will be having general discussion on the gluten free diet
and enjoying pasta from bionature and brownies by Foods by George and more....
Also, details regarding our ROCK Walk, Spring Lake, April 30th and our Day at
the Races, Monmouth Park, June 26th will be discussed. 

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I am working on a sample 504 plan for a child with celiac. Does anyone have a 504 plan they would be willing to share (without the child's name, of course)? I would like to put together several examples of 504 plans for parents. Unless this information is somewhere and I've missed it??? Thanks,
Tania Greenville, PA 

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Plans are underway to hold the 4th Annual Walk for Celiac Disease on April
30th in Spring Lake, New Jersey. Proceeds from this fundraising event will
once again benefit the Univ. of Maryland Center for Celiac Research.

Details to follow.....

* Cel-Kids Web Page: http://www.enabling.org/ia/cel-kids *

<<Disclaimer: Verify this information before applying it to your situation.>>

Just wondering if sidewalk chalk is safe. Just not sure what it is made
from, should I be concerned.

Thanks

* General celiac discussions should be sent to CeliacMAELSTROM.STJOHNS.EDU *

<<Disclaimer: Verify this information before applying it to your situation.>>

I got a number of responses with your opinions regarding treatment of
allergies, Celiac testing, & behavioral changes you’ve seen in your
children.

In addition to probably having Celiac and being found allergic to yeast,
peanuts, soy, lentils, eggs, wheat, dust & some pollens, he was also prone
to severe hypoglycemic-type episodes where he would be in an absolutely
hysterical state if he hadn’t eaten in a number of hours. Thank goodness
that has cleared up dramatically since removing the allergens & gluten (I
was told that removing allergens would 

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Thanks for all the feedback
"Marilyn" told me about a yahoo group for vegetarian gf - I have since joined
and the postings have been helpful so far. (Go to groups.yahoo.com to find
the group.)

"Susan" gave me many suggestions about using Quinoa, chickpeas and chickpea
flour, beans and sunflower seeds. She also suggested taking iron and B12 if
the kids decide to go vegan. 

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Hi
My two kids aged 12 and 15 want to become vegetarians. I'd love to hear from
any gluten-free vegetarians to give me some suggestions as to how to combine
the two.
Peacefully,
Amy G, Chicago, IL area
USA

* General celiac discussions should be sent to CeliacMAELSTROM.STJOHNS.EDU *

<<Disclaimer: Verify this information before applying it to your situation.>>

I am looking for a good Pediatric Gastroenterologist(and if you know of a
great allergy doctor up on the latest techniques, that would be great too,-
I know many of your Celiac kids also struggle with allergies) in Arizona.
With our insurance, we cannot go outside AZ without paying a hefty fee. I
am new to the list and have read all the archives. I think my Mother-In-
Law has also posted this question to the general Celiac list.
Some background:
My 3 1/2 year old was having extreme behavioral 

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Happy New Year everyone..

Well, the resounding consensus to my question on Stonyfield yogurt was 'it
you are not absolutely sure, DON'T EAT IT!!!!'....

Below are some of the recommendations and comments. I bought some Yoplait
Yumsters yesterday and they are OK...the best part for my son was that the
containers had a fire truck on the side....

<<Disclaimer: Verify this information before applying it to your situation.>>

Happy New Year everyone!!!

We are leaving on a trip to LA after the new year. Just wanted to see if
anyone had any restaurant recommendations for us (our 2 year old has
CD)..we will be in Santa Monica, Redondo Beach, and the Corona (riverside
county) areas. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Happy New Year everyone!

Quick question on stonyfield yogurt (makers of Yo-baby yogurt that my son
LOVED before being diagnosed)....I went to their website and they say the
following:

"Does your yogurt contain gluten?
Though we don’t add gluten, there is an immeasurable amount of gluten in
our yogurt, which comes from the processing of the fruit and flavors with
a grain alcohol. The only flavors we can be absolutely certain have no
traces of gluten are our nonfat, lowfat and whole milk plain yogurts." 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Here is a response from Rose Art:

Both our Modeling Clay and Fun Dough are made with wheat flour.

<<Disclaimer: Verify this information before applying it to your situation.>>

Sorry, this is it! I'll forward any additional responses I get.

****
Bob's Candy Canes are GF
****
Peeps are GF. They are those marshmellow treats that use to come out every Easter in the form of chicks. Now they have them for EVERY holiday. I just bought christmas tree peeps and passed them out to my daughters class.
****

<<Disclaimer: Verify this information before applying it to your situation.>>

Thanks for all the great suggestions on daycare/preschool cooking projects. Here is a summary. Happy cooking!
****
-Make blue Jell-O in a thin layer on a pie plate, pretending that it is a lake, decorate with cool whip 'snow,' gumdrop 'trees,' etc.
-Decorate Pamela's cookies with GF icing and candies.
-Spread peanut butter on a pinecone, roll in birdseeds and hang for local wild birds to feed.
****
Easiest Cookies Ever 

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Does anyone know what holiday treats are gluten-free? I'm sure that my child will be given candy canes, at a minimum. I'd like to have some GF alternatives ready, or some recipes for traditional foods that are not GF. Thanks - I will summarize. 

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My daycare provider currently cares for children 18 months to 4 years. She and the kids previously enjoyed cooking projects, especially around the holidays. Does anyone have ideas for what kinds of gluten-free cooking crafts they can do together? Thanks - I will summarize. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Our 7 year old son has Celiac Disease and I am looking for lunch ideas for school. He will eat gogurt/yogurt, peanut butter & shredded cheese. There is no opportunity to heat food, so it has to be cold. Sandwiches are out because the bread is dry. Unless I can heat the bread, he won't eat them. Thank you. Donna <mailto:[log in to unmask]> 

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I have a 8 year old daughter who has Celiac. She has been on a GF diet
for one year now, so we are getting the hang of it. I don't have a lot of
time to experiment with baking and I was wondering if anyone has a good
cookie recipe that I need to make several dozen of? Thank you Amy 

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Thanks to all who so generously replied - I received
25 responses altogether.

The overwhelming majority of people suggested "going
with my gut" (pun intended in most cases!), and
keeping him gluten free for now.

Many people said their children's symptoms were very
similar to Carter's, and many had no known family
history of celiac, so diagnosis took a long, painful
time. 

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Dear All thanks for your responses, as there were so many I will try to
highlight some of the information I received, with much gratitude.

Dr. William Sears (world-renowned pediatrician) has actually done a fair
amount of research on the interactions between food and behavior. You
may want to look for some books by him. He specifically addresses food
allergies and 

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Hi everyone,

Thank you for all the wonderful responses to my 'terrible 2' issues I am
having with my son with CD. I think just knowing that we are not the only
ones that have gone through this has helped us tremendously. I couldn't
respond to everyone but definitely wanted to note that every single one
helped...THANKS!!! 

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Hello-
I am trying to wade through conflicting theories on whether it is a good idea or not to put my 10-month-old son on a gluten-free diet. (This would be in addition to dairy-free, as he seems to have a milk allergy.) 

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Dear Listmates:
Thank you to everyone who responded to my inquiry re: gf fajita marinade. As
kids so often do, she changed her mind and wants something else. Here are
the responses and two very delicious sounding recipes! I've decided to try
these for dinner some time - they sound very yummy!
Peacefully,
Amy G Chicago, IL area (USA) 

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http://pediatrics.aappublications.org/cgi/content/abstract/113/6/1672

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

<<Disclaimer: Verify this information before applying it to your situation.>>

Hi List-

I have noticied alot of discussion lately in regards to kids with CD having
behavioral problems.W too have experienced this with our 8 yr old daughter,
she was diagnosed with CD 4 years ago.

Our developmental Pediatrician just sent us this article this summer and
she was quite excited to see something published that showed a link between
the two. She has seen our daughter for a few years and has had great
difficulty in diagnosing her. She has some ADD symptoms, but not enough
to call it 

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Hi
My celiac daughter wants to have fajitas for her birthday dinner. Does
anyone know of a gf fajita mix? If not, do you know of a recipe for a gf fajita
marinade?
Thanks.
Peacefully,
Amy G
Chicago, IL area (USA)

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

<<Disclaimer: Verify this information before applying it to your situation.>>

Dear whomever this reaches,
My son was recently diagnosed Celiac, we found this out whilst investigating
possible ADHD or Bi- polar disorder, I was wondering if these associated
disorders are common with Celiac disease or if gluten allergy can even be
the cause of, if so can I expect any dramatic changes in my sons behaviour?,
and if so , how long before we notice any change?, he has been on the diet
about one week now, he still has bad days but not as bad, I don't know if
 

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I see a lot of Girl Scout camping outings in my future -- does anyone
have good GF recipes they have used for "camp" meals? (You know, the
kinds of things you can cook on a stick or in foil or in a big pot over
a fire?) Many thanks -- I'll post a summary. (P.S. S'mores taste even
better WITHOUT the graham cracker!)

<<Disclaimer: Verify this information before applying it to your situation.>>

Hello fellow CD parents,

I am at my wits end and in need of some help. My 2 1/2 year old son was
diagnosed with Celiac about 6 weeks ago. We are having behavioral issues
with him now and I am not quite sure how to deal with it. I am hoping you
may have some 'pearls of wisdom' that might help me through this. 

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We like making pizza in our family, and I want my daughter to be able to eat it too. Anyone have any recipies for pizza dough? We have a bread maker, and that's what I usually use to mix the dough.
Kris 

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Hi,

I am having a hard time finding confirmed gluten free hot dogs for my two
year old. I've tried hebrew national (that are on the CSA GF list) but he
is having a bit of reaction to them. The ingredients look ok but not sure
if there are contamination issues. Any suggestions for 'kid-friendly' GF
hot dogs? 

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Hi, I just got a question from the preschool teacher about using stamp pads for a craft project. The projects involves the kids using their thumbs to make prints on paper. Does anyone have information about stamp/ink pads and whether there is any gluten concern? 

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Dear friends:

The Central NJ ROCK (Raising Our Celiac Kids) group will hold it's first
meeting of the season on Thursday, Sept 23 at 7 pm at the Monmouth County Public
Library in Manalapan on Symmes Road. We welcome parents of celiac children,
adult celiacs, family and friends who want to join us to share ideas about
living a happy, healthy gluten free lifestyle. 

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I am wondering if there are any college scholarships for teenagers that
have celiac disease and if so where I could find them.

They have scholarships for kids with diabetes and asthma; but I can not
find any for celiac disease.

Thank you!

* Cel-Kids Web Page: http://www.enabling.org/ia/cel-kids *

<<Disclaimer: Verify this information before applying it to your situation.>>

Dear All,
Dana is now turning 6 and was diagnosed with CD 4 years ago. She is doing great! She is under a strict GF diet but we were lucky enough to have the needed support both at home and at school.
We are planning now a great adventure: My wife and me, together with our 3 kids (Sharon, Dana and Mark) are heading to Disney next November.
Here in Argentina we know what to buy and where to eat, but USA is s different country, isn't it?
I need 

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New Hands
Oil Free Acne Mask/ Scrub
Oil-Absorbing Acne Mask (Discontinued)
Oil-Free Acne Wash
On the Spot Acne Patch
On the Spot Acne Treatment Tinted
On the Spot Acne Treatment Vanishing Formula
On The Spot Blemish Wand
Overnight Lip Therapy
Pore Refining Cleanser
Pore Refining Cream
Pore Refining Cream SPF 15
Pore Refining Mask
Pore Refining Mattifier (Discontinued)
Pore Refining Toner
Radiance Boost Eye Cream
Rainbath Dry Oil Spray
Rainbath Moisturizing Body Mist (Discontd)
Rainbath Shower & Bath Gel- All
Rapid Clear Gel
Razor Defense Daily Face Scrub
Razor Defense 

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Here is a list of Neutrogena products that are GF

Neutrogena (Johnson & Johnson) (800-582-4048) (www.neutrogena.com)
(ve=03/26/04)

After Sun Treatment
Alcohol-Free Antiseptic Cleanser (Discontd)
Alcohol-Free Toner
Anti-Cellulite Treatment
Anti-Residue Shampoo
Blackhead Eliminating Astringent
Blackhead Eliminating Daily Scrub
Blackhead Eliminating Treatment Mask
Body Clear Body Lotion (Discontinued)
Body Clear Body Scrub
Body Clear Body Wash
Body Emulsion
Body Lotion
Body Oil
Clean Conditioners- All
Clean For Color- Color Defending Foam (Discontinued)
Clean Replenishing Instant Shine Detangler (Discontinued)
Clean Shampoos- All
Cleansing and Makeup Removing Towelettes
Clear Pore Cleanser/Mask
Clear Pore Oil 

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<<Disclaimer: Verify this information before applying it to your situation.>>

I guess I wasn't clear in my questions, a lot of people didn't
understand that my concern is her touching my face/make up and getting
it into her mouth or me kissing her and it getting into her mouth.

Here are the responses I got from a number of people. Thanks to everyone
who responded! 

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Please tell me if I am being silly or not. Do any other mothers' worry
about their makeup contaminating their CD kids? I have been making sure
that my base, powder and lipstick is GF. I was using Cover Girl but they
will no longer give status of their makeup. Does anyone know of another
pharmacy/grocery brand that is safe? 

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My daughter is 3 and we are getting ready for preschool this fall. I know that envelopes, stamps, etc. that must be licked contain gluten. I am wondering about self-adhesive stickers (and foamies). I have tried contacting several companies and have been told they are unsure whether gluten is in the adhesive. 

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Is there anyone who can send me info about little celiacs with big
temper tantrums? Could it be a gluten intake problem?

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

<<Disclaimer: Verify this information before applying it to your situation.>>

Hi- I received tons of e-mails asking for this info, so here it is:

Gluten-free play-doh is available at discount school supplies for around $18 for 5.5 lbs. www.discountschoolsupply.com.

Thank you to everyone who sent me information. Tania Pineo

** Please remember some posters may be WHEAT-FREE, but not GLUTEN-FREE **

<<Disclaimer: Verify this information before applying it to your situation.>>

My daughter starts preschool this fall. I know most play-doh has gluten in it. Does anyone know of a gluten-free play-doh that can be purchased? (I know there are recipes...) Thanks, Tania Pineo

* General celiac discussions should be sent to CeliacMAELSTROM.STJOHNS.EDU *

<<Disclaimer: Verify this information before applying it to your situation.>>

Our 3 1/2 yo son was just diagnosed with celiac disease. We are already GF at home because his father has celiac disease, but we would welcome help with the following issues:

1. a sample letter or good way of educating the daycare/preschool, friends, etc. 

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We just returned from two short trips - one to San Francisco (where we
stayed in a hotel with a kitchenette) and the other to Traverse City,
Michigan (where we stayed in a hotel that said they had a kitchenette,
but really only had a small fridge - no freezer - and microwave oven.
However, we have relatives there so we could use their gluten-filled
kitchen - another first for us). We considered both trips to be
successful since our celiac daughter did not get very ill - only a 

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Our 4 and a half year old daughter has been on the GF diet for 7 months. Her moods have improved greatly but still has days of many temper tantrums which are possibly caused by gluten contamination. These temper tantrums can last for an hour and she goes into a raging state in which it is impossible to calm her down. Afterwards she is sugary-sweet and extremely good natured. It is like a Dr Jeckll and Mr Hyde episode and we are at wits end dealing with these. We are 

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My daughter was diagnosed at 1 and 1/2 with celiac disease. We try very hard to follow a strict gluten free diet. She is 6 years old now and very healthy. The biggest frustration we have is with cross contamination. My daughter is quite sensitive, so we see reactions in terms of her moods quite quickly, along with tummy complaints and looser bowel movements. We are trying very hard to find a gluten free hot dog right now. We have found many that in terms of ingredients seem to be 

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Many of you suggested allergy testing. What kind of
allergy testing is best and who should do it? GI docs
or allergist? Has anyone heard of the ALCAT test?

Also, thank you all so much for your responses to my
question about my daughter's very tentative diagnosis.
We have an appointment with Dr. Fasano at University
of Maryland next month and I now feel more informed
about what to ask him. 

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My son is off to "Bug Camp" at our local children's zoo next week and I need
ideas for gluten-free "spider legs."

The teacher, a wonderful woman who has taught celiac kids before and
understands their special requirements, told me that one of the most popular
projects of "Bug Camp" is when they make cookie spiders and she asked if I
could possibly send along safe substitutions for the usual ingredients. I
can make GF cookies, frosting and find candies for the decorations, but I
can't figure out what to 

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Hi there..I live in Colorado Springs and I was wondering if there might be anyone else in the same area. I'm thinking of starting a ROCK group but am new to this and was hoping to have some help :). If you live in the springs or know anyone who does would you let me know, if you are interested. 

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My daughter is 3 1/2 years old and we have a very
tenuous Celiac diagnosis. I would like to know if
anyone else has experienced similar issues. She grew
normally until she was one. Then from 1 - 2 she only
grew 2 inches and 2 pounds. At age 3 she started
complaining of stomach aches. (not very bad but
almost everyday.) She also is fairly moody and
doesn't have a bowel movement everyday but those are
very tenuous "symptoms". I realize they may just be
her. Her growth picked 

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<<Disclaimer: Verify this information before applying it to your situation.>>

thanks to all -- many of you have come across taco seasoning that is not
GF. I'll send in a substitute for the sloppy tacos. She probably won't
mind this -- she is very accepting of the diet. We are fortunate that
either (A) she never gets exposed the gluten (yeah, right!) or (B) she
has very mild reactions (once in awhile there is inexplicable diarrhea
or stomach ache). There is a camp sleep-over Thursday night, so I know
she won't want to have an upset stomach for that.

<<Disclaimer: Verify this information before applying it to your situation.>>

Tomorrow's lunch menu at my daughter's day camp is "sloppy tacos" --
tortilla chips and taco meat. No one at camp can tell me the
ingrediants. I don't think I have ever seen an (unflavored) tortilla
chip of any variety that has wheat or any other gluten-containing
ingredient in it. Of course, the taco meat may be more suspect, but
once again, I don't think I've ever seen taco meat that had ingredients
that were off-limits. I'm tempted to let her eat it, but am still
concerned. What would you 

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Hello all.
My son suffered from stomach aches, bloated tummy, bowel accidents, foul smelling bowel movements that floated (classic symptoms) for about 3 years. Our family doctor suggested he be tested for celiac disease, and so we had the IGa and Igg tests done. he came back strong positive (34) for Igg, normal for Iga. The doctor told me he had celiac disease and recommended a gluten free diet and follow up with a specialist. We immediately started the GF diet, and saw improvement right away. Six weeks into this, 

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Hi, I'm Anastasia and one of my twin nephews is autistic, he is a gorgeous
little boy and very affectionate, unfortunatly he is allergic to wheat,
gluten, yeast, dairy, strawberries, and some starches. He goes wild
whenever he sneaks those things and it's getting increasingly hard to keep
them away from him now that is is 5, and his twin brother isn't allergic
to anything, He has started stealing food at his kindy, from his brother,
off other restaraunt tables, etc, anywhere he can get it, he is not under
 

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Hello all.

My 2 ½ year-old son has been gluten-free for over a year. Unfortunately, we
were told to make him gluten-free before his biopsy in April 2003. He was
gluten-free for three weeks prior to his biopsy and for four weeks prior to
his blood work. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

My 4 year old is celiac and soy allergic. Until recently, Jamba Juice fruit
smoothies were one of his favorite treats. But now the company has
introduced a diet version of their shakes that contains Splenda (artificial
sweetner) and since then he has had unpleasant reactions to every smoothie
he has had. Once he was given a diet smoothie by mistake, and had a nasty
reaction - cramping, diarrhea, nausea for 3 days, so I suspect his ongoing
reactions are due to cross contamination in their blenders. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Many thanks to all who replied.

Responses regarding an out of town GI:

Can't have easy access for spontaneous visits for less serious issues

It's worth the travel to see the right doctor

Request that the out of town GI establish e-mail contact with you. Keeps
everyone on the same page 

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<<Disclaimer: Verify this information before applying it to your situation.>>

While one listmate reported that she and her daughter were unable to
tolerate any brand of marshmallows I received no responses that anyone has
had difficulty with this particular brand. Some suggestions were that
perhaps the corn syrup or modified food starch were problem ingredients for
my son. Turns out that it is the gelatin that is problematic for my son.
Gelatin in Hy-Vee marshmallows is derived from pork, to which my son is
allergic. I never would've made the connection were it not for listmate
Carol who happened to 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Hi group,

Does anyone have any experience with this Iowa City peds GI? We live in Des
Moines. Dr. Grothe left our practice in November and now Dr. Gregory is
leaving as well. I called Omaha and was told they could see my kids in
August. Dr. Bishop is able to see them in June. I'm looking for insight as
to what it's like to work with him. Also, does anyone have any tips on (or
pitfalls of) having your kids see a peds GI who is several hours away 

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Hi group,

Has anyone had problems with these? The last three times I've made cereal
treats my son has had diarrhea, been irritable and unable to sleep. The
cereals I use in the treats he is able to eat without incident several times
per week. This product is listed in the CSA Commercial Products Listing as
being gf. Thanks for the feedback. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Has anyone with DH noticed a reaction to Enviro Kidz Peanut Butter Panda Puffs or Koala Krisp cereals and also their new Crispy Rice Bars? They are clearly labeled gluten free, however, my 3 year old seems to be extremely sensitive. We just discovered after weeks of searching that she was reacting to Arrowhead Mills Buckwheat Flour. The company says they use gluten free ingredients and they are very dedicated to washing their lines between runs but that they do make several other gluten containing flours and that it would 

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<<Disclaimer: Verify this information before applying it to your situation.>>

If you have celiac kids and/or are part of a support group which
includes celiac youth, please read/respond to the following (if you have
not already done so). Thank you VERY much! You can email us directly at
[log in to unmask]

Hello! Our names are Mo and Shira from MoShi Strategies and we are
working in partnership with the greater Celiac Community to do a needs
assessment and possible curriculum development on a children’s support
group curriculum. We are also researching the need for a parent support
element to the curriculum. We 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Fort Worth ROCK will be have its April meeting and Easter Egg Hunt on
Saturday April 10th at 10:00 am.

Location: UICI

9151 Grapevine Hwy (Hwy 26)
North Richland Hills, TX

The Easter Egg hunt will be held in the grassy areas behind UICI and we
will also have our usually meeting with lots of goodies. Please remember
to bring a basket or bag for your children to put their eggs in. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Our family is fairly new to gluten-free holiday cooking. Does anyone know of a gluten-free whole ham for Easter. We've tried contacting several companies with no response. We would like to cook one ham for the whole family instead of a separate portion for our six year old celiac. 

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My 19 month old daughter was recently diagnosed with Celiac Disease. She
has been on a GF diet for just over one month. My concern is regarding
what appears to be joint pain around her hip area. We first noticed this
about three months ago, right around the time we started looking into her
bloating and lack of weight gain. Initially we thought she had pulled her
muscle, or bumped into something while playing. But it has not gone away,
and appears to be getting worse. She is very uncomfortable 

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hi all...

a little late notice, but does anyone know if the shamrock shakes at
mcdonald's are gluten free.

your help is appreciated. I will summarize!

thanks. sue

* General celiac discussions should be sent to CeliacMAELSTROM.STJOHNS.EDU *

<<Disclaimer: Verify this information before applying it to your situation.>>

3rd Annual Int'l Walk for Celiac Disease in Spring Lake, New Jersey
to benefit University of Maryland's Center for Celiac Research
Sunday, May 23rd North Pavilion
9::30 registration
10:300 Walk begins
Join us as we walk up to 4 miles along the picturesque boardwalk of Spring
Lake overlooking the ocean and beach and enjoying the company of many people
with this lifelong disease.
Gluten Free Vendors, refreshments, door prizes!!
Great prizes for top fundraisers include NFL tickets, dinner gift
certificates, and much more!! 

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We complain so much when we are dismissed or treated poorly by
companies. Well I want to tell you all about a great experience my celiac
daughter had today.

My daughter is 8 years old and has been diagnosed celiac for 5 years. The
diet is second nature and she really is a great sport about things she
cannot eat. Her school had a magazine fundraiser and as one of the prizes
for the number of magazines she received a candy necklace. I called the
number on the necklace to 

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Hi to all
I am sorry if this is a repeat. I have tried several time to send my summary but have not seen it come through.
I will send the bulk of the responses in a Word Document to any interested parties.
I will gladly send them to you. The attachment of responses are very interesting and informative.
I also have 2 people who offered to help any one with questions. you can email me for their names as well.
I know now that you can send posts that 

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I am sending this again and in 2 parts. I now it is rather long but I feel all the comments made are valuable to anyone dealing with the public schools.I am sorry for any inconvenience.

Here are the results of the survey.There were a total of 67 responses. 

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I forgot this one thing:
"There are several common misconceptions about the criteria for
eligibility for 504 Plans. Section 504 does not require a child to have a learning
disability or for a physical disability to impact the child's academic ability.
For example, a student who is in a wheelchair (physical disability) who is
earning straight A's (no learning disability) must be provided with a ramp to
access the school. Similarly, a student with Celiac Disease (and yes, it does
qualify under the definition of physical disability) who earns straight 

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Hello all. I will try to keep this brief. I would sincerely appreciate any help. I'm a bit lost right now.

My son is two years old. In January 2003 he was diagnosed with milk and egg (white and yolk) allergies. In May 2003 he was diagnosed by endoscopy with CD. We keep a gluten-, milk-, egg-, peanut-, tree nut-, shellfish-free house. All foods in the kitchen are on the gf list provided by the Celiac Sprue Association and I have read every label in the event of a manufacturing 

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R.O.C.K.
Raising Our Celiac Kids

SUPPORT GROUP FOR KIDS WITH CELIAC DISEASE
Thursday, February 19, 2004, 7:00 p.m.

The Central New Jersey chapter of R.O.C.K. (Raising Our Celiac Kids) is
hosting a support group meeting on Thursday, February 19 at 7:00 p.m. the Monmouth
County Library Headquarters, Symmes Road in Manalapan, New Jersey. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Hi to all,
I would appreciate if you can all take a moment to respond to this quick survey regarding schools and celiac.
your input is greatly appreciated.

How supportive are schools in meeting the needs of students with Celiac
Disease?

The Greater New Haven Celiac Children's Group is conducting a survey to
determine how aware parents are about 504 Plans* and to determine what accommodations
schools make for children with celiac disease. How aware is the education
community about Celiac Disease? How aware are parents of their children's rights
 

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I'll be talking in Palm Desert, CA this Saturday, January 24 at 1 p.m. -- the topic is "Living and Loving the Wheat-Free/Gluten-Free Lifestyle" -- I'll be covering a lot of the state-of-the-art research, too, as well as the subject of raising happy, healthy, gluten-free kids. I believe the talk is free. 

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ORIGINAL EMAIL QUESTION:
Our 12-year old daughter has missed enough school over the years due to
health-related problems that she has real gaps in her education. She
was diagnosed with celiac last April, and still is not 100%. Most
recently, in October, she was diagnosed with acid reflux as well, and
has taken Nexium (40 mg) for two months. Since her symptoms and
diagnosis with reflux, she has missed so much school that we have
decided to homeschool her or seek homebound schooling to fill in her
educational gaps and 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Our 7th grade daughter was diagnosed with celiac last April. She
seemed to be doing a little better on the GF diet (i.e. she would have
a good day every week or so), but began to have strong stomach acid
pains in October and has been on Nexium (40 mg) for two months and is
about to try a lower dosage. She has missed approximately 1/4 of her
school days this school year (and many more classes, as she is worse in
the mornings and therefore goes to school late 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Do you think it would be OK to give my 5 year old daughter with Celiac an
occasional bath using Aveeno Soothing Bath Treatment (Colloidal Oatmeal
100%?) She has severe eczema from time to time.

Thank you for your opinions on this and I will summarize. 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Our 2 1/2 year old girl has just been diagnosed with celiacs. She has a
nine month old sister that we will continue to feed food with gluten until
she is 2 or so and then probably have tested. I guess we could just use
some encouragement ... what really works for breakfast, when traveling,
good bread recipes ... etc
Thanks 

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I am looking for a gluten-free glue stick. I know Elmer's glue is okay, but for young children, glue sticks are so much easier. If anyone knows a brand name, let me know. I've contact several companies with no response about their products as of yet.
Thanks,
Dawn
PA 

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<<Disclaimer: Verify this information before applying it to your situation.>>

Hi everyone...I just wanted to introduce myself.

I am new here and I have a little two year old that has celiac disease
along= with severe allergies to milk protein (casein).

I do have a quick question about this Halloween. Does anyone have any
tips about trick or treating that you all do? I got some tips about
going around giving candy that she can eat to the houses and then when
we come they will give that to her but we recently moved and know no one
here. Any 

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Several people wanted to know how to get the pamphlet for adults working with
GF kids. I made a mistake in my original email, it was put out by Gluten
Free Living. I have made copies and provide one to teachers, camp counselors,
afterschool program staff, etc. I would suggest that you contact them at
[log in to unmask] to find out how to get a copy. 

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Hi all.

Just thought I'd pass on a success story in the hopes that it might help another child who has to drink a barium preparation for an upper GI. This morning we put powdered Tang in the barium mixture and my 23-month old son drank plenty without any coaxing. He is usually not a big fan of "new" drinks. According to CSA's cooperative food listing Tang is gf. Hope this helps someone. 

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Thanks for all the help. Here is the info on the book:

Eating gluten free with Emily - written by bonnie j kruszka- can order by
calling 888/795-4274 or www.Xlibris.com :)

Also, try
Click here: Celiac Disease & Gluten-Free Diet Bookstore (Gluten-Free Books)

One person suggested I NOT do the book for child of the week so he didn't
feel like he was different, I have thought about hat and will leave it up to him.
Either way I will share it with the class as one parent said she 

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I wanted to let everyone know about a positive experience I have had with my
son's school nurse and his teacher. Jeremy just began Kindergarten. Before
school started I spoke with both his teacher and the nurse about managing his
diet and my desire for him to have as positive an experience as is possible in
school. I asked the nurse if I could keep some GF food in her freezer and she
agreed no problem. I gave his teacher a copy of the Gluten Free pantry
pamphlet for adults 

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HI,

WITH THE HOLIDAYS COMING UP DOES ANYONE HAVE A GOOD SUGAR COOKIE RECIPE FOR
TODDLERS? I HAVE A 21MONTH SON WHO HAS CELIAC AND HE LOVES SWEETS. ANY
SUGGESTIONS WOULD BE GREAT.

THANK YOU,
C MCGINLEY
RICHMOND, RI

* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *

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Dear Listmates,
I need your help. I know that many of you are bold adventurers who
don't let your celiac get in the way of your lives, but we are not.

Can you please share your secrets for fear-free travelling with me?

We are contemplating our first trip away from home since our 12-year
old daughter was diagnosed with celiac last April. Frankly, I am
terrified. She is hyper sensitive not only to gluten, but also to
canola oil (and possibly has other food allergies -- we are checking
into 

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