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Celiac/Coeliac Wheat/Gluten-Free Children List <[log in to unmask]>
Date:
Thu, 14 Jan 2010 09:51:55 -0600
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Jennifer Wilton <[log in to unmask]>
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<<Disclaimer:  Verify this information before applying it to your situation.>>

All, if anyone can recommend a Pediatric GI doc in St. Louis who is
sensitive to and understands Celiac, I would really appreciate it.

So far, I have been to TWO docs who have wanted me to put my daughter on
gluten for 6 weeks then biopsy in order for them to 'confirm' her celiac
diagnosis. Previous biopsies did not prove celiac but a strict GF diet has
made her healthy. When she eats gluten, she vomits, has blood in her BM,
gets rashes, etc. I am unwilling to take her off her diet because they want
to do tests that may or may not confirm what I already know. Is the entire
peds GI establishment this way? Would love any recommendations.

Thanks in advance for any assistance.

Jennifer Wilton
St. Louis, MO

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