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Hi everyone,
I am new to this group and recently Dx with classic metabolic dysfunction/serum insulin issue and there is diabetes in my family as well. I have felt pretty awful much of the time for years. Have celiac as well and am now realizing the immense problem I am having with all of our typical high glycemic, starchy flours and am taking measures to correct this. I am a big foodie, too, have written a cookbook, etc.
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I just want to say thankyou to all the responses I've had to my first question on here, I will look into posting all the useful answers. I have a few specific questions I'm hoping to get some answers to, I apologies if they have been answered before I just can't see this myself . I have been told I have diabetes, and only that it will go into type 1. I had a GTT which had elevated blood glucose for a few hours around 14mmol ( x18 for other
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hi
I'm new to this so I'm hoping I can get some helpful advice. I feel so unwell and low about it all and I have a young baby to. I have pcos, lactose intollerant, celiac, recently diagnosed with diabetes and I get I'll after eating fat! My blood sugar goes up to 11 after food and 3 hours later to 2.8, I'm not on any medication, I get blurred vision after eating and tired and sometimes sugary smellng urine. Then my blood sugar falls very low and this happens
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Are you working with any doctors that can help you? Being that I am Type I Diabetic, I have to take insulin and use a pump to do so. Gluten free items can be so high in carbs and I have to carefully watch what I put into my mouth. I have utilized a great support group to help educate me about the celiac disease, different nutritionists, taken gluten free cooking classes and my endocrinologist is very supportive in getting me help with managing my diabetes. I am going on
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Hi Bernadette, I'm in the US, so I not sure what your blood sugars equate to. I'm Type 1 diabetic and have had problems with blood sugars going up and down and when they go up, it takes forever for them to come down. If your sugars are dropping when you haven't taken any meds, I would say that you are in the honeymoon phase of becoming a Type 1 diabetic. However, I recently had all my female hormones tested and found that at age 42 my DHEA was elevated.
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Thanks to all who responded to my inquiry about Agave Syrup.
Most said Agave can be used in place of sugar (while reducing the recipe's liquid). Others indicated it was a nice substitute for pancake syrup without raising their blood sugar levels. Two indicated that they didn't care for it. However, most felt they used it quite successfully -- particularly in baked goods. I plan on using it this weekend when I bake cookies. I'll let you know how they turned out.
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Haven't used it, but IMHO --- How the Glycemic Index (GI) effects each us is not a given. GI numbers are not cast in concrete, but an average of testing done with a group of individuals. Only you can know if this product effects your body differently than other sweeteners such as sugar, etc.
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Hello all-Sorry it took so long for me to get involved with this dicussion. First, I am type 1 diabetic (34 years insulin dependent) and I am Celiac (3+years diagnosis). I also have had minimal control over a lot of things for years that includes blood sugar levels. The good news is that we can always begin again and I am thankful that I have done so over the last year. I am part of a lifestyle change through Market America and their Transition Lifestyle Program. It is low glycemic
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Recently, I bought a bottle of Organic Blue Agave Syrup, a low glycemic organic sweetener. It claims it has less influence on blood sugar than other sweeteners. Has anyone ever used this product successfully? I'd like to use it in place of processed sugars in baking breads and desserts. I've included their website address and would like your opinion of this product. Thanks.
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Thanks to everyone who so generously shared their recipes for a gluten free/sugar free (almost), chocolate cake. There were several excellent recipes, and several ideas for using gluten free cake mixes. Following is one of those recipes. Enjoy!
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My daughter was diagnosed with polycystic ovary and also has celiac.The Doctor. said to follow a low cab diet.Does anyone have this problem it so can you give some insight.
* Search the logfiles at * * http://maelstrom.stjohns.edu/archives/CELIAC-DIABETES.html *
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Hi Joann,
sorry to hear about your daughter.
In one of my recent blogs I addressed this issue in a roundabout way. Go to http://360.yahoo.com/diabetesavoidancecoach and look through the past posts.
From my clinical (natural medicine) experience there is a strong link with a possible risk of developing pre-diabetes and diabetes --> midriff obesity (beer-belly). Overweight, possible adrenal-thyroid imbalances go with it --> padding / storage around the hips. Bloating, brain fog, lack of focus, fatigue, sleep issues, occasionally even fibromyalgia-like symptoms go along with that.
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Does anyone have a decent gluten free/sugar free chocolate cake recipe? I'm having a dinner party and would love to serve something "decadent" for dessert.
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Just want to thank the many people who responded to my email about frustration in preparing meals. Since I was recently diagnosed as a Type 2 diabetic I guess I was feeling a bit sorry for myself.
With all the people who responded, many who are Type 1, I realized that I will be able to manage. Some even shared recipes and gave me ideas on what foods to eat, like whole fruits instead of juices; leafy greens and lots of salads (which I love). They also told me to
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As a diagnosed celiac for at least half my life, I now find myself being diagnosed as a Type 2 diabetic. Suddenly, the gf breads, the side dishes, fruits and desserts I used to enjoy are now off limits. I am also lactose intolerant so dairy is also taboo. Since you are all pretty much in the same boat, how do you handle it?
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I got about eight replies and most of them said they would call them as well. One said that I could use something else to make sandwiches and I told her that I am Air Force retired and can get them in our commissary at a slightly higher price. The commissary, of all places, has two of Natures Path Kidz g/f cold cereals as well as all of Bob's Red Mill gluten free products as well as some g/f pastas. I like the Mighty Tasty Hot Cereal and mix it
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Hi List,
I'm new to this list, but have been on the celiac list for 3-4 years. Year ago was diagnosed type 2 diabetes & am having trouble combining the 2 diets. Oddly enough, I have adapted quite well to the celiac diet. But knowing whats acceptable to the diabetes diet is where I'm having trouble.
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Hi! I am T2 and celiac and started Byetta about a month ago. Having bad nausea and gas+cramping. Anyone else taking Byetta? Side effects seem to be getting worse rather than better. thing is my BG numbers are almost normal for first time in ages so will stick it out if side effects will subside but wonder if Byetta is harder on celiacs because of gut effect (GLP-1, DPP4 inhibitor). Any ideas? Thanks!
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Thank you for all your input!! Iam new to this or any listserv - I am getting e-mails but don't see the replys here - in any case I appreciate all the response. I'll definitely give it a bit longer -- nausea is a bit better yesterday and today after taking docs recommendation of taking pepcid. I'd been taking an anti-nausea med to no or little avail but the pepcid seems to make a real difference! Go figure. Yes, very pleased with BG numbers -- really normal! I have been
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Thanks to all for your interest! Join us for our next focus group!
We are seeking individuals on a gluten-free diet to participate in a focus group to be held at the Reston Regional Library in Northern Virginia on Saturday, April 14th from 1:00 to 300pm
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Well so, this group is alive an unwell. It's no wonder as the dual challenges of CD and DM are enough to take up all our time and attention!
I am planning a meeting in March in Gettysburg, PA for those with both diseases. If you have any suggestions, please share them with me! I'd be glad for topics, helpful hints, carb counting of GF foods, how to live with numbers ( blood sugars, carb grams, ratios,etc.) for math-challenged people.
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I am newly diagnosed with celiac disease and also have type 2 diabetes, under control, and several other conditions which limit me in various ways. Now this.
My label reading has been confined to carbs, fiber, sugar and trans fats. Now I must look for gluten containing products, including hydrolyzed what nots. I am also reading a book by a doctor who promises me I will get either a digestive system cancer or thyroid cancer if I don't go gluten free. Well, already had the thyroid cancer, resulting in no
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Hi Helen,
I have undiagnosed Celiac and, while my blood sugar levels tested at 100 the one time, I'm very sensitive to sugars. In fact, I'm just now trying to figure out how to eliminate all added sugar from my diet. I don't eat any wheat products. And while other gluten foods don't hurt me as much as wheat, I have sworn off all gluten for health. Gluten foods are not that important, if it means risking intestinal health. Actually I stay as healthy only by being on the SCD
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Hi Helen,
Sorry to hear you are a celiac. I have been one for about 10 years now and my blood sugar runs high. Rice is very high in carbs. I am trying to control my sugar with herbs I got from my acupuncture. I'll let you know if they work.
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Hi
I was wondering if anyone takes any vitamin and mineral supplements? I was told by my doctor and have since read a lot about diabetes vitamin and mineral deficiencies. Tests have revealed I have low level of chromium and this is one of the most common causes of diabetes. So now I take a mineral supplement "chromium picolonate" (a NZ brand "Thompsons" the Glucose Sugar Manager) which helps to balance my sugars and makes me better able to tolerate my carbohydrates, before I couldn't even eat one portion of
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My experience is that I don't "react" to glutens as far as pain. My reactivity is that my blood sugars rise quickly and stay elevated much longer when I eat them. I also experience delayed gastric emptying from glutens. So the reactivity can happen in a variety of ways.
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I also seem to have blood sugar rise when I get even the smallest amount of wheat product. I normally don't have a lot of cravings, but after getting wheat poisened, I crave everything. I found yesterday that the excessive blood sugar (feeling) can be reduced significantly by 30min of aerobic exercise. Also lemon juice helped a little.
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Hello,
I'm sorry... I forgot to be specific about my condition and my needs. <sheepish grin>
I'm a celiac and a Type II diabetic. I am enquiring to see if a.) Any of you are type II also, b.) Have gone on any long term hikes (we are talking over 2 weeks here!) and c.) How did you fare?
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Hello, I am enquiring to see if any of you have gone on any long term hikes (we are talking over 2 weeks here!) and how you fared. I need to know the following:
1. What did you pack to eat? 2. How did you manage your carb intake?
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On Wednesday, the Celiac related lists at StJohns will be moving to a new home.
We have been hosted at StJohns since November 1994 as part of their outreach program to the community. The issue of supporting the Internet has been an annual item of discussion for the last few years. Recently the University announced that all StJohns list would stop on 1 February 2006.
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There is a bakery in the Orlando FL area making GF low carb NY style cheesecakes, and ships throughout US. The only sugar in it is the natural sugar in the cream cheese. The ingredients are: CREAM CHEESE, EGG, LEMON, VANILLA, CORNSTARCH, ARTIFICIAL SWEETENER. For those who can tolerate the fat content of cream cheese you might want to check www.supremecheesecake.com for nutrition details and company information.
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I saw a link for health insurance for people with medical conditions in a blog recently. Does anybody know about this site? http://guaranteedissueplans.com
It looks legit just wondering if anybody had any experience with them.
MD
* All posts for product information must include the applicable country *
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Hello, everyone. I am glad to find this list. I don't know if I am celiac or not, but I am allergic to wheat, rye, and possibly barley. I am also Type II diabetic.
A little history...
I have had intestinal problems for about 24 years (mostly diarrhea but also gas, cramping, etc.), and the symptoms have gotten worse and worse. I went to many doctors who all said I had Irritable Bowel Syndrome, but they had no real tests and nothing they had could help me. I did go
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Changing Lifestyles, LLC Specializing in Individualized Medical Nutrition Therapy via the Internet
Changing Lifestyles, LLC is the private practice of Theresa Cornelius, MS, RD, DN, who specializes in assisting clients adapt their lifestyles to accommodate the following conditions:
* Celiac disease and other gluten intolerant diseases * Gastrointestinal Disorders * Food allergies/Intolerances * Diabetes * Weight and stress management.
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Thank you for responding to my request for positive experiences with infusion sets:
* 13 people, all except 4, recommended the Minimed Quickset, 6mm, 23' with "inserter that is awesome." Also called "as kid-friendly as they get." * Other recommendations for slender children included the Animas Comfort Set (mom stated that the terminology is user friendly for kids who are learning to change own sites), the Disetronic Tender mini, the Cozmo with Comfort Set, and the Rapid D. * Several people mentioned insulin-pumpers.org, on online way to compare experiences with
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Brianna, 10 years old, has been using the Minimed paradigm pump with the Silhouette infusion sets for 4 years. I am unfamiliar with the advantages of other pumps, particularly the infusion sets, as I think it might be time for a change. She is slender and the site is always covered in blood a day later (Minimed has tried to assure me that this is not a problem). In addition, I'm wondering if another pump might be more kid friendly in terms of learning to change the site herself.
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Hello.
Received this site to advocate for the diabetic students. It will go directly to the person who is wanting to convince (nationally) that school personnel can *not* assist diabetic students with their needs.
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I have been recently told that I have Celiac and Diabetes. I have been to see a dietitian with no help on what to eat. I have a 14 year old son with the same symtoms as I have. Can anyone help me with recipes and good eating habits? I am finding that I eat to many of the wrong things for diabetes so want get sick from the Celiac. Which makes my blood sugar crazy...
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Has anyone ordered the new "Wheat Free, Sugar Free Gourmet Cooking" by Sue O'Brien? I have not been able to get any info on it such as what type of recipes are in it. Please let me know if you have any info.
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Although one respondent thought that Skittles in a tube contained wheat starch, I talked to the people at Skittles today who confirmed that ALL Skittles are gluten free regardless of the package. The only Skittles that come in a tube are mint, which too are gluten free. She told me that the modified food starch is from corn and that they work very closely with the food allergy network, so that any source of gluten would be revealed. Nonetheless, there are other candies which may have gluten added when they
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I have recently (3/12 ago) been diagnosed with Coeliac disease after life long GI symptoms. (I am told that as an infant I was addmitted to hospital with a life threatening mal- absorption syndrome after being weaned off the breast.I was sent home to die, with the final bit of advice to resume the diet on which I was last well. A neighbourhood collection of breast milk from breastfeeding mothers saved the day and thereby ensured my survival.)
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Happy Holidays Everyone, Thank you all so much for the emotional support and encouragement you provided in your responses. It was very nice hearing from all of you. I appreciate all the suggestions and recipes you provided. Someone wrote that to cut back on carbs try potato skins hollowed out w/cheese,sour cream and bacon. The same person wrote to fry tomatoes in olive oil sprinkled with some basil for breakfast. Another person wrote that Gorilla Munch Cereal was good. Another's suggestion was to limit red meat to once a week
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Hi List! Its been a while for me since being a member of the list. I guess the last time I belonged to the list I wasn't quite sure about diabetes and what it meant and how serious a disease it is. And having Celiac on top of it. Well now, for some reason, I've finally come to my senses and want to do something about both conditions. Maybe I've just realized that I'm not immortal and if I keep ignoring these diseases I'm not going to live as long
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Dear Parents of Children with Diabetes and Celiac Disease,
My name is Teresa A. Van Nuland. My son, Tyler, was diagnosed with insulin-dependent diabetes and celiac disease at age six in 2001.
Currently, our family is working with the Disabilities Rights to Education and Defense Fund organization (DREDF). This organization is investigating circumstances that resulted in my son's expulsion from La Petite Academy - Kenosha. After two and one-half years of providing insulin administration, La Petite Academy has decided that it is no longer willing to accept the liability of
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When an issue affects multiple groups of people it is harder for Congress to ignore. Part of our job, at the American Celiac Task Force, is to help Congress understand food labeling affects more than the celiac community.
We have begun efforts to educate lawmakers about the connection between Type I diabetes and Celiac Disease.
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Thank you to everyone who responded to my email. I have received a number of emails so I am posting a summary now and will update it as needed.
As with most things related to our health and diabetes, the change in insulin requirements with a gluten free diet varies by person. Some have needed more insulin because of the increased carbohydrates in gluten free foods, while others have found a marked decrease in their insulin requirements once they were on the gluten free diet. My doctors expected me to
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Hi there,
I was diagnosed with celiac disease about a month ago and have had type I diabetes for 13 years. Since starting the gluten free diet last month not only am I feeling significantly better, but my insulin needs have been plummeting. I am on an insulin pump and was taking 35-40 units of novolog per day. I am now taking 19 units a day. I'm not complaining but I am wondering if anyone else experienced this change when they went gluten free. If so how long does it
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Greetings, I just discovered this group. I am the father of a diabetic child (type 1) who's also diagnosed with Celiac, and thus the ongoing interest in the subject. TUFINIT's line of products are Gluten free and Lactose free. For US customers, their products are available only via the Internet, on http://www.TUFINIT.com The products are shipped from Edison NJ. All their products are GLUTEN FREE, and are on the approved list of the Israeli Celiac Society. Some of their products are sugar free. Regards Eli
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My son Daniel - 24years has very bad hay fever. He wanted to have the cortizone injection this year. He tried emailing his diabetic nurses but got no reply. Eventually his doctor said he couldn't have it because it would affect his insulin. He had very bad diabetic neuropathy two years ago where he was put on a small dose of cortizone in the form of tablets so I can't understand why the injection would affect his insulin. He has again had a really bad time with the hay fever
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Those who are both diabetic and gluten allergic need not worry about traveling by plane, train, or automobile. It's pretty easy, actually. When traveling by car I always have an ice chest on the back seat and a supply of fresh bottled water, vegetables, sugar-free gelatin desserts, diet sodas, rice cakes, unsweetened nut butters, hard boiled eggs and low fat cheeses and a loaf of gluten-free bread -- and a large thermos of coffee (which I replenish at rest stops). I will also have some sugar-free candies and homemade, sugar-free-GF
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Breakfast: gluten free cereal (stock up b4 hand), milk, oj or fruit Lunch: Tuna/PBJ/Cheese/Deli/Hard boiled eggs, gluten free crackers, salad Snack: rice cakes, peanut butter, apple, gluten free power bars (can use for meal also) Dinner: I don't know where you are sleeping (in your car? motel?), but if you have any acess to an electrical outlet, I'd suggest buying a single burner, and take a pot, some g.f. pasta or rice, and make some of that if you can't get to a diner that is gluten freindly or 'in
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[log in to unmask] writes:
> Wendy's and MacDonalds have a chicken salad that isn't too bad
Thanks, Daniel, for summarizing all of the wonderful suggestions for traveling while following a gluten-free diet. I just wanted to point out that the chicken salad (yes, even the grilled one) at McDonalds is NOT gluten-free. I checked on their website and it does contain wheat. I am not sure about the one at Wendy's. There must be some type of flavoring that restaurants use on grilled chicken that contains wheat or gluten. I've even seen
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I have received many great tips, suggestions and ideas. Thanks to all for the great replies and well wishes.
Visit a health food store, and pick up some gluten-free crackers. Also bring corn and or rice cakes to snack on, or substitute for bread to make an open faced sandwich. I bake my own GF bread, and slice it up, freeze it, and keep in a cooler when I travel along with my insulin. You can always get ice somewhere. I buy the individual size applesauce (for a quick sugar
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Responding to the inquiry about a decent GF bread -- I purchase GF White Rice Bread (also available yeast-free) made by Ener-G Foods and toast it to improve the flavor. It's available at your local health food store or available via the internet. Also, check some of the celiac site links provided by this website to find recipes for making your own breads -- especially if you have a bread machine. One of my favorite recipe book authors is Bette Hagman. She's written several excellent GF cook books. Finally, available
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Hi Daniel:
Those who are both diabetic and gluten allergic need not worry about traveling by plane, train, or automobile. It's pretty easy, actually. When traveling by car I always have an ice chest on the back seat and a supply of fresh bottled water, vegetables, sugar-free gelatin desserts, diet sodas, rice cakes, unsweetened nut butters, hard boiled eggs and low fat cheeses and a loaf of gluten-free bread -- and a large thermos of coffee (which I replenish at rest stops). I will also have some sugar-free candies and
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Hi,
I will be driving across country next month (Albuquerque to New York City) for the first time after my CD diagnosis. I have had Type 1 Diabetes for 35+ years so that is not a problem but is definitely part of the overall equation. We only stop when tired so we have no idea where we will be eating dinners, etc. I am assuming my breakfast, lunch and evening snack will be brown bag. Does anyone have any tips they have used successfuly for maintaining a GF diet while
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If you want a good, nutritious meal/heavy snack, try a plain rice cake spread with peanut butter and topped with applesauce. I know most people don't like rice cakes but the other flavors cover it up and just add the texture of the crunch. This isn't fattening, it's gluten-free and tastes great. Try substituting the applesauce with slices of banana and other combos.
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I'm really sorry if you were waiting for this summary. Basically I have too much going on. I need to have blood work done this week so the doctor added the thyroid panel to it. I did learn a lot about this subject so I wanted to spare the responses with you. I have been eating more protein and think that was the answer. Thank you to all that posted. Below is my original post:
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Can anyone tell me why I am always so hungry? I had a bagel from Kinnikinnick this morning and an apple a few hours later. I feel like I had nothing to eat. Is this from insulin? thyroid? I have gained a lot of weight this past year and dieting is just not working. Any ideas?
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Well I am diabetic and I have found since I keep my carbohydrates to a fairly low number my blood sugar has gone down dramatically. Mine was also very high before I changed my way of eating.
I personally would no longer eat a banana with rice things. That is really overdoing the carbohydrates and not enough protein. For me a better choice is perhaps an egg with some bacon and a tomato and mushrooms. I would not have any bread or cereal or anything else with that.
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GINNY, Hi, I am not familiar with the Type 2 Diabetes, but I want to suggest that when you have your snack, or breakfast, that you also have a source of protein or fat to help slow down the metabolism of your yogurt or cereal and fruit. That is what I do with my son who is a Type 1 diabetic. Hope this helps!
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Ginny Mingolla wrote:
> About 3 times so far I > have woken up in the middle of the night with sweats. When I take my sugar > it's between 50 & 60. The first time it happened I could not get in touch > with my doctor so I asked a friend if I handled it right. I had gotten up > and eaten and gone back to bed. She told be to stay awake until it gets > closer to normal. > > I finally got in touch
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Hi Ginny, I'm sorry you're having a hard time. Could you say what kind of insulin you are taking-is it Humalog (very fast acting),Humulin R (regular acting), Humulin N (long-acting), Lente(even longer/slower acting) ?? Are you on a "sliding scale" where you give yourself anywhere from a lower amount to a higher amount of insulin (say, 9 units to 13 units or something)depending on your blood sugar?Or do you always give yourself the same amount?
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To keep a constant blood sugar level during the night, my Nutrition MD recommended eating a few tablespoons of pinto beans or other, least gassy beans, with the evening meal. Also she suggested brown rice rather than white, slower-acting carbs rather than fast.
A tip: microwaved potatotes may be broken down to a simple sugar. Oven baking or boiling is better.
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I take Ultra-Lente and Humilog in the morning. Humilog before lunch and dinner and NPH at bedtime. This has kept me fairly even. I use the Humilog on a sliding scale depending on the number of carbs I plan to eat for the meal and whether or not I plan to exercise heavily following the meal. You probably will need to use a variety of insulin to keep your blood sugars close to normal. A snack at night of carbs helps too. Check with your doctor and nutritionist to get
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Try having snack before bed that has protein and a bit of fat in it. And check your blood before bed and be sure it is > 100 before going to bed. THose 2 strategies might prevent lows.
Don't beat yourself up about the > 200 am reading following nocturnal low. Many people "rebound" and it is not necessarily related to overtreating the low. Do a 3 am blood sugar reading 1 - 2 times per week, that can verify if your current insulin dose is right or not.
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Ginny -- I'm not sure whether you have type 1 or type 2 diabetes. My daughter (age 10) was diagnosed with type 1 diabetes 3 months ago . . . Our method for treating lows is this: Check blood sugar (glucose)level. If less than 80, then we treat the low with a "quick" sugar such as fruit juice or glucose tablets in amounts that have a total of 15-18 grams of carbohydrates. We re-check her blood glucose level in about 10 minutes. A 4 oz. juice box will reliably increase
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> Are there any products that are sugar free that do not contain > aspertaine? > > The only thing I have found so far are applesauce's that say no added > sugar. > > Are there any other products out there that have no added sugar?
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Ginny,
I'm not sure what kinds of sugar free/aspartame free products you're looking for, but if you go to the splenda.com site, I believe they have a list of products that use splenda as a sweetener. Also, if you look for low carb foods on the net (might start at lowcarbluxury.com, they've got a list of vendor sites) you will find a lot of sugar free/aspartame free foods, many of which are also gluten free.
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Ginny,
If you have a Walmart Superstore near you, find out if they carry Blue Bunny (made by Wells Dairy) brand yogurt and ice cream. Their yogurt is WONDERFUL and has only 13 or 14 carbs and is sweetened with Splenda. It comes in 16 flavors and tastes great. Their chocolate covered vanilla ice cream bars (called Sweet Freedoms) have only 11 carbs. (unfortunately these are sweetened with aspertame). They also have fudge bars (also sweetened with aspertame) that have only 9 carbs and some that I like better that
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Hello there from Argentina!
My daughter has diabetes 1 and celiac, she is 9 years old, and I am very interesting on recipes with Stevia.
Stevia is still new in Argentina and I have no recipes to do with it. Please, let me know where can I find them free on the web, because I want to learn to cook with it.
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I asked my question to http://www.LifeScan.com and they answered that large doses of Vitamin C may interfere with laboratory tests that rely on oxidation or reduction reactions. These tests include estimation of cholesterol or glucose levels in the blood.That is why I have to contact the manufacturers of each particular product that I use to see if the test strips are affected by Vitamin C.The manufacture will know specifically what products are used in strip production and if Vitamin C will affect the results. Sincerely,Nady
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Normally, I do not approved cross posting between Lists, but this information is applicable to both Lists. This is from the Celiac List
----- Michael Jones mailto:[log in to unmask] Orlando, FL USA One of the Celiac, Cel-Kids, Celiac-Diabetes, Celiac-Dietetic, Cel-Gps, & Cel-Pro Listowners: Mailto:[log in to unmask] Our Web page http://www.enabling.org/ia/celiac/index.html
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i was diagnosted in May type 2. i have very bad blood glucose test. But my glucometer tells me that all o'k. I check myself many times before and after meals(after 2 hour).my glucometer is OneTouch Basic. i check glucometer too. I drink vitamin C beverage (80 mg)every time when i eat meat or fat food, twice a day usually.Can vitamin C affect my glucometer tests? my diet is very strict. i don't want any meds.
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Hello, I have skiied, skated, swam, walked and done bikathons with diabetes. In those days I was using two types of insulin to control the sugars. I have since changed medication.
I now use a fast acting insulin at meals(out of your system after an hour) and slow acting insulin at bed time.
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Hello,
I noticed a few new people to the D/Celiac way of life. IÂ’ve had type 1 for 11 years and celiac for 5 years. Here is info that helped me, or worked for me:
1) At the beginning test often; especially if you are trying something new (say first time skating since the diabetes diagnostic). This way you will know yourself as a diabetic. 2) Winter sports: Exercise could change your medication requirements. I noticed for me that when I get cold feet(ex. Skating) that burns up sugar. So
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Hello.
My Son who will be 6 in April was diagnosed with Diabetes September 2000, just last Friday he was diagnosed with Celiacs disease, we have adjusted his diet, but now he's complaining that his stomach hurts. He never had any symptoms of Celiacs Disease, and rarely had any stomach aches. So now we're feeling very frustrated, before switching he was fine, now he's miserable with stomach pains, is it from constipation, or is the diet harder to digest??? I was hoping that someone could give me some advice or
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Living in the US, the standard way to calculate carbs is to divide the total gram count per serving by one's particular carb to insulin ratio. My daughter, diabetic/celiac and on the pump enjoys foods made by SCHAR. Their labels, as well as many other delicious foods made by manufacturers outside of the US, do not provide grams per serving. Can anyone explain the means used to calculate carbs for these foods?
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Does anyone have a recipe for a decent gluten-free french/italian bread or baguette? And perhaps also a ravioli dough? The commercially packaged gluten-free breads are really awful! They are dense enough to use as house bricks, and taste bad as well :-( Thanks in advance! Barbara
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Hi all..its nice to see some action again on this listing..Jay (my husband) has had diabetes for 27 years and dx with celiac in 1999. He started the pump in November and I just wanted to update those of you who were SO SUPPORTIVE when I was trying to get him to agree to try it..... we are doing very well (see you can teach an old dog new tricks!!). He likes the convenience, but he's still having many high readings (very few lows though). How long did it take
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My son was dx with Type 1 diabetes in Sept of this year. While we were at the hospital, the Dr. decided to do a blood test for celiac as well, the results were positive enought to do the biopsy and yes he has it. He had NO previous symptoms at all. He has been gluten free now for almost 3 months and now he has the symptoms. Stomache aches, can't go to school, sick after he eats. Any ideas on what is causing this? I'm guessing he's getting cross
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How strict is he with his diet? Does he avoid distilled white vinegar? It's makes a hugh difference. Where did he get the gluten free diet info from? Have you called the companies to check on his medications?
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From what i have heard, this happens all too often. Many many kids with type 1 diabetes are found to also have CD upon routine screening, yet they never had any symptoms prior to diagnosis. It makes me so happy to hear of centres who actually do the routine screening. I had been very sick with symptoms of CD when i was diagnosed with type 1 diabetes and they still didn't screen me for it.
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Hi Patty: I could be a couple of things. He could be ingesting some of the hidden glutens or eating something that was once thought to be gluten-free (i.e., a brand-name product). I receive the CSA/USA Commercial Products Listing and manufacturers are most always changing their products. You just have to read every label on every can or jar. It takes a lot of time to do this, but you feel better and have more peace of mind.
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My I suggest you take your son in to see an allegerist? Don't get overly alarmed at the results. An allergy to cats and mold is common, just look for the biggee. That might explain it. (And the fact that kids don't always tell the truth about what they eat.)
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In a message dated 1/13/2003 [log in to unmask] writes:
> He has been gluten free now for almost 3 months and now he has the symptoms. > Stomache aches, can't go to school, sick after he eats. Any ideas on what > is causing this? I'm guessing he's getting cross contaminated somehow and > is very sensitive. I'm very frustrated because he was feeling much better > before we took him off the gluten. >
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Hi Patty-
I'm a pediatrician, type I diabetic for 10 years, and my endocrinologist just tested me for celiac a few months ago and I have the antibodies. I have started GF even though I haven't yet had my biopsy, and I also have noted MORE GI symptoms since. I have my first GI appointment on Thursday and I will certainly ask them. Everyone says "oh now you're just looking for symptoms" but I didn't have them before. As a doc, I wonder if it is because the villi are
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Hi
My daughter was diagnosed with Type 1 diabetes 4 years ago at the age of 3 ½. Six weeks later she was diagnosed with Celiac also.
Like your son, Jessica showed almost no signs of Celiac prior to diagnosis - she had the odd gastro bout with vomiting and diarrhea, but what kid doesn't?
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HI,
I'm not sure if I should post to everyone or ask you a question. I read your response to support and was wondering if you had diabetes or celiac first? I have had celiac for 6 years and in the last year, following the birth of a 10 pound 7 ounce baby have had some trouble with my blood sugars that have been corrected with some weight loss and decreased sugar intake. (The celiac began after the birth of my first child) It all looks like type 2 diabetes
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Tonya, I have only been diagnoses with Celiac since November 15th. I had anemia for over a year and a half and they could not find the cause. I had been very sick the past year and a half and was ready to pack it all in. I got depressed and felt horrible. I had no energy and felt sick all the time. Since I went on the gluten free diet I have felt much better and a week ago had major surgery that I could not have had a
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I was diagnosed with Celiac Disease 8 years ago and found out I had type 2 Diabetes four years ago. I'm also lactose intolerent (sometimes it seems worse than others). Thanks for asking. I wouldn't worry about having to use insulin at this point if I were you but I would watch my diet carefully especially going easy on sweets and fats and rich food and getting lots of exercise.
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Hi listmates! I'm newly diagnosed with Celiac and have had Diabetes for about 2 years now. I'm also new at posting messages to this Listserv. I guess I am just looking for support from my fellow listmates. I am having such a difficult time adjusting to having Celiac. I guess in time that will go away, but for right now it seems very frustrating. The other day was the first day I cheated on the gluten-free diet(after two months gluten-free). There were two raviolis' in the refrigerator (left over from
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There is a lot of us in that same boat. For me it's T-1 diabetes, DH, CD and psoriasis in that order. I cheated and drank some beer last month, while we went on a cruise out of Charleston, SC, as Anheuiser Bush claims that the new Michelob Ultra and Bud Light is made from rice and that the barley protein is actually turned into amino acids during the brewing process. Their scientists are unable to detect any measurable amt. of gluten according to their spokesman. it may have caused
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Hi Les - Welcome to "les miserables" :-( !! I've had celiac disease for about 4-1/2 years now, and have been a diabetic since 1986. It is very difficult to try to balance the two. Are you on insulin? I am a type 1 diabetic (don't make insulin at all) and take 4 shots a day. Pain in the fingers, I must say! But necessary if you want to live a long, fairly healthy life. How old are you? I also belong to the UVA (Univ of Virginia) Celiac Support
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Hi Les
My daughter is 12 with both celiac and diabetes and we know how sick you can get. She has been on the GF diet now for4 years or more but she still has accidents with accidental ingestion of gluten and wow how fast she reacts.
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Dear Les, I hope you can or have learned to cook gluten-free food. For many years it was horrible but now there are all kinds of good foods available. My sister went for about 35 years trying to have good food; she did not have the wonderful knowledge we have now available to her, but she survived with both problems. Keep things you can eat in the freezer. Some individual items can be eaten frozen and others can be quickly heated in the microwave. This way, when you are tempted
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Les,
Glad that you joined the list. I went GF about two years ago and just found out that I have a problem with diabetes. Both are difficult adjustments, but can be done. This list has helped me a lot in knowing how to get along in a gluten packed, sugar filled world. It is not such a big deal to me now, but there are challanges at times.
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Hi Les. I think you needed to do that as a test. Because you are still unsure it's only natural for you to test it. Live & Learn. It will only make you believe more that you have celiac. I'm glad you found the celiac-diabetes list.
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Hi all of you who responded to my plea a few weeks ago I just want to let you know Jay started the pump this weeK !!! Thank you everyone who gave him the support he needed. We just started on insuklin Tuesday so we definitlly need to fine tune (yesterday he could not get below 200-uuggghh) but the nurse educator said thats to be expected any helpful hints? Also my mother made Jay the BEST gluten free bread last week (lots of trial and error) Once she gives me
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Good luck Sandy with Jay's new pump! My daughter Rachel started on pump month ago. Doing better now. (She was in hospital with DKA 6 days after we started.) Now we know if we get a reading over 250 twice in a row - we do an insulin injection THEN check what else could be wrong. Their bodies need insulin and since they don't have any long lasting insulin anymore (Lantus or NPH), it is very important to not let high readings go. Be prepared for some midnight and 3
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Hi. Can anyone recommend a yogurt that is gluten free and not to high in carbs?
I also see an ice cream in the supermarket that I would like to find out about. Healthy Choice. They have a no sugar added ice cream. I don't know if it is gluten free. Has anyone looked into this already?
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If you have a Walmart Super Store, the very best is Blue Bunny. It is sweetened with Splenda and depending on the flavor has 13 or 14 carbs. They have about 18 flavors.
Diane in SC
At 09:40 AM 10/29/2002 -0500, you wrote: >---------------------- Information from the mail header >----------------------- >Sender: Celiac-Diabetes Support List > <[log in to unmask]> >Poster: Ginny Mingolla <[log in to unmask]> >Subject: Yogurt >------------------------------------------------------------------------------- > ><<Disclaimer: Verify this information before applying it to your situation.>> > >Hi. Can anyone recommend a yogurt that is gluten free and not to high in
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My father is diabetic. He does not eat right and he has not lost the required amount of weight. How do I help him to achieve his goals when I am 90 miles away. I am very concerned about his condition. Can you give me information about the National Diabetes Association or any other support groups I can join. Thanks so much.
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Hi. I just attended a daylong seminar on preventing diabetes. They say getting exercise is more beneficial than losing weight. At least 1/2 hour a day, I had read a research article earlier that said 5.5 hours a week was the magical number. That's fast walking. And a lot more than most people do. Since you're so far away, I doubt that you can help, unless he wants to help himself. You might try getting him on some probiotics, as if he has a load of yeast in his gut,
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First thanks to Cheryl in PA for her information on pumping. We are trying to gather as much info as possible on the feelings about those who use the pump (okay to be very honest I'm gathering as much info as possible to HELP convience my husband it is the best route to take). I know I cant make the decision for him but it is because I love him that I want whats best for him. He's already had some complications from the longevity of the diabetes and we
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Hi Jackie, I am not going to be much help about what to do, but I just wanted to acknowledge how difficult this must be for a young mom and the children too. I ma so fortunate in that none of my children have either diabetes or gluten intolerance, although I do test their blood from time to time. When they let me, that is. They are all grown and they just say, Oh, Mom. So of course I tell them I brought them into the world, I can take
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Well, as you can see this list is alive and well. I guess we can debate the well part but we are all taking care of ourselves. It's great to see so much activity here. I have to apologize because some of the posts I tried to answer were sent directly to the list instead of the individual.
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Hi, I am a Mom with both diets (GF, Type1). I function well at home. I take the HUMALOG quick insulin at meals, which saves me the burden of snacking (burden because I was not always hungry nor at the right place, ex.grocery shopping). My household goes through fruit like it was water!
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Lise, those weddings and outside functions can be horrendous. I too have gone hungry. Some people in the hospitality industry think that when you say you are a Coeliac they think immediately that you can't eat meat. I say, definitely no, I can eat meat.
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This has happened to me also. Wedding or going out to eat at very expensive restaurants. I'm told we don't have potato or rice. What's up with that. Sorry you had to go through that. Two months might be too far ahead. They might forget. I always give it only a week.
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This is very scary, I mean the fact that you can't get enough to eat. We didn't go away for a holiday with the children this year as my twins both have celiac and one has diabetes too they were only DX just before Christmas last year. She is not on MDI regimen and therefore requires certain snacks and meals on time or a least not too late. I know that we could have gone self catering, we usually do, but we also used to enjoy going out for meals
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Dear Jackie,
I cannot IMAGINE having to deal with Celiac in children. I am 45 and find it complicated!
It wasn't until I was diagnosed, about 4 months ago, that I realized what an important role FOOD played in my life - socially. My husband and I use "special dinners out" as our way of connecting with each other. I have two teenagers, and we have found that if we get them out in a restaurant, we could have MORE of their time and attention. And I have so many
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Hi Jackie:
My name is Tim Brennan I am currently traveling in Canada watching my 15 year old daughter play hockey as the goalie for her provincial (elite) team. We live in Halifax, NS, but today she is in Caclgary Alberta. She has D &C and manages quite fine on the road. Her secret is alternative meals rather than substitutes.
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I am happy to see the many recent posts to this List. (Thanks to Ginny for jump starting it again.) Our problems are more complex than those discussed in the Celiac-only List, and it's been enlightening to read how others are dealing with our dual dietary restrictions. Here's some of my own survival strategies:
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Hi Cheryl in PA
My daughter is pumping too and that has changed her whole lifestyle in many ways.
As to baked goods, I make hers and use all low fat products, low sugars and substitute STEVIA in alot of recipes so that helps alot with lowering her carbs. Today she had a low fat blueberry loaf ( 1 slice ) cooked with an egg in a non greased pan. Made into a type of French toast. She loved it and plans to have it again this week. We seldom
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Cheryl,
I find your no. 4 to be what keeps me going as well. Before Celiac Disease - before diabetes - I was a junk foodaholic! I lived for Burger King! Sometimes, when I try to rationalize it all, I think that these diseases were my saving grace, Now I am forced to eat whole, pure foods. (I just wish the rest of the world was on the same track so eating out at restaurants, or eating at friends was less complicated!)
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I had a pancreas transplant 3 years ago and then was diagnosed with Celiacs in March of this year. I thought my gastroparesis had come back with a vengeance. I have been tolerating gluten for the last 6 weeks so I question the diagnosis as the blood test was negative. I had a really difficult time with the diet after being able to eat whatever I wanted since my transplant. After being a diabetic for 35 years, I had no dietary restrictions and the celiac diet is worse that the
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Hi Lori
I have a daughter of 8 years she has been diabetic for 3 and a half years. Over a year ago she developed symptoms that were like gastroparesis. Hypos straight after meals and hypos that were really difficult to treat. The diabetes team didn't take any notice even when I told them that I was having to give her Actrapid well over half an hour AFTER she ate otherwise she would hypo. This went on for 6 months or more! There was never any mention of celiac. It
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Dear Deborah,
You are very courageous to admit to deliberately flouting the gluten prohibition on this forum. I imagine you may hear from quite a few people about it. It's like going to an AA meeting and admitting that every now and then you like to knock one back.
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My son is 23, has been diabetic since he was nine(type 1) and was diagnosed celiac 2yrs ago (though probably had it for at least 4yrs prior to that) He also has diabetic peripheral neuropathy and did have symptoms of autonomic neuropathy but has recovered quite a bit from that. I'm interested in knowing peoples experience of how quickly they react to eating gluten. When he reacts it is very severe but we have trouble working out what he may have eaten because we don't know the time it takes
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Ann,
I react differently, at different times, to gluten, and the only thing I can figure out, is that it may be the different types of gluten that I am reacting differently to. I am still in the "angry/denial' stage, and will intentionally eat gluten out of that anger. So, for instance, today I ate a SUB (bad!), and got very sick within 4 hours. Other times it can take a lot longer. I have tried reading information about the intestinal track - and how long the digestive process takes
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My celiac is complicated with my having diabetes from being exposed to Agent Orange thirty years ago when I worked in Korea for the Dept of Defense. The diabetes hit at 45 my menopause
For the past few months I have been going thru a detox to remove the Agent Orange which is stored in abdominal body fat. In fact, the body makes fat to encapsulate the AO so it doesn't destroy the body. Traditional Chinese Medicine is the method used. The diabetes is going! Even my md is impressed--he
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Hi Ginny, I am very new to this group, but I can relate to your problem in reverse. I have been diabetic for 6-7 years now, very well managed and then the roof fell in at the beginning of this year. I was diagnosed with microscopic colitis which has similar symptoms of Celiac disease. Others in a support group I am in are gluten free because tests have shown them to be gluten intolerant. I am trying the gluten free lifestyle and it does seem to be working. My blood
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Talk to your doctor about increasing your insulin levels--fever and illness often cause blood sugars to rise.
If you cannot keep food down, try regular, sugared ginger-ale. You still need to take in carbos to balance the insulin. Also, keep your fluid intake up--broth, GF bouillion is great.
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Hi Ginny
I am not sure what you mean by a diabetic diet. My daughter who is 8 years old eats the same sort of diet as everybody else except that its gluten free. I mean I don't let her eat loads of sweets/candy but I didn't let my other children eat lots of rubbish either but she still has ice-cream nearly everyday in the summer and cookies and sometimes a cake or muffin for bedtime snack. The only sugar substitute she has is in diet drinks. She has had
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Hi Ginny
You said....I understand the relationship between celiac and diabetes. I have numerous other autoimmune illnesses. Does this mean I definitely have Type 1 diabetes? I have never really gotten an answer about what Type I have from the doctors. They have joked about me being a 1 1/2. I have been on insulin for over a year (diagnosed 2 years ago).
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Ginny,
I have been just RECENTLY diagnosed (within last four months) with Celiac Disease, and Type II Diabetes (no insullin.) I actually find the Diabetes diet (and I am using the Diabetes Food Guide Pyramid with a Nutritionist) easier to follow - than trying to eliminate Gluten from my diet.
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I am told there are many kinds of diabetes, not just Types I and II.
I, too, have gone back on milk products and find that one of the "original formula" Lactase tabs with each small serving of rice pudding or aged cheese is a wonderful help in avoiding discomfort.
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Ginny, My son is diabetic and celiac. He was diagnost diabetic when he was 6 and Celiac at 15 he is now 19. So I have been dealing with both problems for sometime. As for the sugar craves...that I believe is more mental than physical but my son had similar craves. The answer is not to deny yourself, don't go crazy but if you want a candy bar or something sweet go ahead...just cover it with a small shot of insullin H works great for short term quick sugar cover.
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>Its most likely that you have type 1 if you have other autoimmune diseases. >You don't say how old you are. Are you a very young adult or a bit older >than that??? and is that why there is some uncertainty about the diagnosis? >You say that you have been DX for two years but have only been on insulin >for a year. So does that mean that you were on diet and exercise or other >meds?? Did you need to lose weight? Is that why you were on a
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Hi Ginny,
Your situation is just the opposite of mine. I was diagnosed with diabetes 35 years ago at the ripe old age of 13. Definitely Type 1. If your body makes no insulin, you are Type 1, otherwise you are Type 2, even if you require insulin to control it, is the way I understand it. It seems people just try to make things more confusing than they really are. In July this year I was diagnosed with Celiac Disease after about eight months of unexplained weight loss. Weight
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I mentioned in my post that I have a number of autoimmune illnesses. The hardest one for me to deal with is a condition called Interstitial Cystitis. It is an inflammation of the bladder lining. I get a lot of pain from it in the abdomen. I just wanted to pass the info on in case it might help with your daughter. Does she have any symptoms that could be urinary (frequency, urgency)?
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It does sound like Late on -set Autoimmune Diabetes in Adults.(LADA) There is quite a lot of information on the net worth looking at. I hope you get to grips with your diet. I guess at my daughter's age 8, we don't need to consider fat content and sugar content quite so much as she is thin and skinny but I guess when she gets older she will she will have to take this into account, as all adults should really, I have just eaten a small chocolate bar!!.
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HI. I once had a dietitian tell me that to tell if you are type I, figure out what your weight in kilograms is (2.2 lb per kg). That is about the same amount of insulin, in units, that would indicate you're not making insulin. Less than that means you are making some of your own, however, more than that still might mean your body is not responding to the insulin so is needing more to get it's attention. Not sure that helps you figure anything out, but maybe. Helen
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My mother was a type 2 diabetic and on insulin for two years before her death. As I understand it type 2 is where the body produces insulin but the cells are resistant to absorbing it. It might help to look into information on syndrome X and insulin resistance. Another source of diet ideas is the catabolic foods list. If you are lactose intolerant taking lactase tablets before drinking milk will help some people. I hope some of these ideas will help. Alice
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Hi Kathy,
I have lots of concerns about how a physician makes a diagnosis of diabetes. For three years I have gone down this celiac/wheat allergy road and was doing well being gluten free for about the last year. Then, my doctor gets all excited during a routine exam a few months ago and says that I have diabetes when the blood tests come back. She wants to start me on insulin that day.I resist and ask for other proof. She does an A 1 C test that confirms a
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Dear Ginny
My 12 year old daughter was diagnosed with diabetes at the age of 18 months (after a measles, mumps, rubella immunisation) and earlier this year was diagnosed with coeliac disease after a routine screening for this disease in children with diabetes. She had had no symptoms that we were aware of and does not react noticeably if she consumes gluten now.
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Kathleen:
Injecting insulin does not make one a Type I Diabetic. Type I diabetes is frequently referred to as Juvenile Diabetes since it is generally diagnosed in children and young adults. I myself was diagnosed in my early twenties. Type I is an autoimmune disorder - as is Celiac's disease. I do not know as much about Type II diabetes but I do know that it CANNOT turn into Type I.
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It is not accurate to say that if you are taking as many units of insulin as your weight in kilograms, that you don't make any of your own. The average amount of insulin that most people with type 1 diabetes take is BETWEEN 0.5 and 1 unit per kg of weight. I weigh 62kg, and take a little less than 30 units of insulin. I have type 1 diabetes and make none of my own insulin. When I was not on the pump, I took about 50u per day,
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There has been some interesting talk about the differences between the different types of diabetes and how they are diagnosed. Type 1, like Type 2 diabetes can be diagnosed at ANY age. Yes, it is true that most people with type 1 developed diabetes as children or young adults, but it can develop at any age. The way to tell if it is type 1 is to have antibody tesing done. If there are anti insulin and anti islet cell antibodies present, then you have autoimmune diabetes (type 1 or
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Andrea
It always amazes me how little insulin you need when pumping. Sasha is 8 years old and takes about 25 units of insulin (injections) and she weighs just slightly over 25 kilos. So you as an adult pumper need barely any more than she does.
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Ginny:
I've been a celiac for more than 30 years and a Type 2 diabetic for five. I am also lactose intolerant. Do I stick to my diets -- you bet! Since being on a strict celiac diet there have been no migraines, no intestinal problems and a general feeling of well-being. On the diabetic diet I've lost 30 lbs., and am now controlling the disease with diet -- without medication. (By the way, Type 1 diabetes is juvenille diabetes; Type 2 is adult-onset). Found that cutting out fatty foods
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It was interesting to read of someone else whose child was diagnosed with celiac disease who had no symptoms. We just had a child diagnosed with celiac disease and still find it difficult to believe as he really had no symptoms. We actually have three of our five children who are type I diabetic and our four year old was just diagnosed with celiac. Finding foods that are gluten free that a four year old will eat, without giving him too much fruit, is the greatest challenge. I would certainly
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I have T-1 diabetes, DH and CD. I travel to CA regularly as well as go on cruises. Numerous times I have eaten Tigers Milk low fat Chocolate Brownies for snacks or meals. The ones that are not, "low fat" are classified as protein bars. It just says nutrition bar. After 31 years I take 18 units of Lantus at night and a shot of Humalog before each meal. (on a sliding scale) depending on what my bg is. These bars are .44 in Wal-Mart and .88 for a large
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Join the celiac listserv and check the archives for snack ideas. Get "Kids with Celiac Disease" by Dana Korn-a whole chapter on snacks and candy (M & M's, tootsie pops and rolls, junior mints, butterfinger--all gf). Go to Frito Lay website and request a gf list-most are fine, like fritos, most chips, cheetos, etc. Look at food suppliers like the Gluten-free Pantry in Milwaukee, WI and the Gluten-Free Market in Buffalo Grove, IL (both have mail order from website). Off the top of my head also are Sargento string cheese,
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It's been a long time since anyone posted. I might have been the last one. I wish we could get more activity on this list. I know we are a small group but I think we all need as much support as we can get.
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I want to but a few books on diabetes and was wondering if anyone could give me recommendations. I am excited about the new book "Managing Celiac and Diabetes....together". I sent an email last week and am waiting for info on where to send a check and how much. The other book I was thinking of buying is "Putting your diabetes on the Pump". I already started on the pump this week. I was wondering if anyone has this book. If so, is it all about the decision to go
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After much experimenting, I have come up with a popsicle recipe that my kids like, that is healthy and without many carbs. My kids aren't used to eating sweet substitutes and I don't do nutri sweet so this may taste bland to those who have aquired sweeter taste buds. I suppose more stevia may take care of this.
This is a great site filled with all kinds of information on diabetes. I am doing alot of reading as I sent this to you as it has a little bit of everything in life here including a good section on pumping..
Jana in Nova Scotia Love of our neighbor consists of three things: to desire the greater=20 good of everyone, to do what good we can when we can, and to bear,=20 excuse and hide other's faults. --St. John Vianney
Copyright 2002 by Michael Jones, Bill Elkus, and Jim Lyles - All rights reserved worldwide.
Permission is granted to copy this document, at no charge and in its entirety, provided that the copies are not used for commercial advantage, that the source is cited, and that this copyright & disclaimer message is included in all copies.
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Hello
I am sending these and they have sites with recipes and all kinds of information on stevia. Enjoy as we love stevia...
Jana
http://www.cookingwithstevia.com/ http://www.stevia.net/ http://www.childrenwithdiabetes.com/d_08_b50.htm alot of good links here
http://www.steviacanada.com/ Remember to keep their conversation chart handy to do exchanges . I am doing alot of tests of new recipes right now to see if we can make gluten free diabetic foods with stevia successful.
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Hi Everyone,
Does anyone know if this artificial sweetener is gluten free? I've been avoiding it after reading "Against the grain", which says that it is "questionable", IIRC.
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Hi. I need some help. I am really struggling to get my diabetes under control and I know part of it is the fact that I need to be on three diets at the same time. Anyway, I do need to work harder at this.
Copyright 2002 by Michael Jones, Bill Elkus, and Jim Lyles - All rights reserved worldwide.
Permission is granted to copy this document, at no charge and in its entirety, provided that the copies are not used for commercial advantage, that the source is cited, and that this copyright & disclaimer message is included in all copies.
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Does anyone have diet information that addresses both celiac and diabetes diets all in one? If so, what was the source of the information? Does it use exchanges or carbohydrate counting? [log in to unmask]
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My husband (who has both diseases) had a dietitian set up a suitable diabetic diet for him and then we made it gluten-free. Mostly we eat plain foods i.e. for supper we would have plain meat (chop or small steak), boiled potatoes a veggie and a salad with fruit for dessert. I make gluten free bread which he eats at breakfast and at lunch for his carbohydrate exchanges. In Canada we use exchanges. Our diabetic information came from the hospital which supplied the diabetic training that both my husband and
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Hi
My 12 yr old had both medical problems and we did exchanges before but now do carb counting. Carb counting actually works better as foods can fool you about what is inside them per serving size.
I hope you have the best helps as it takes awhile to learn. I am in Canada.
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Hello,
My husband also has both diseases; First was Diabetes Type I, diagnosed in 1994 and last year it was Celiac (Dermatitis Heptiformis). We attended Diabetic classes and although they were very informing and we did learn to balance our carbohydrates, they could not help with any suggestions for a gluten free diet.
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According to their FAQ page on their website (www.russellstover.com), all their products are gluten-free. "Are your products gluten free? Yes our products are gluten free."
They provide the following additional info for their sugar-free products "For our sugar-free products the sweeteners used are called maltitol and ACK (acesulfame potassium). Diabetics please consult your physician."
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Does anyone know of a quick acting low, low blood sugar treatment like the Cakemate tubes that are gluten free? Something that will go in quick and easy for a young child?
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Hi my name is alissa amlin and I am a second year nursing student at the university of Windsor in Ontario. I am currently doing a paper on type one diabetes and am looking for patients and health care professionals that deal with chronic alteration in health to do an email discussion with so I can better understand. My email address is [log in to unmask] your participation would be greatly appreciated. Alissa
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Hi! You mean I'm not the only DI celiac hypothyroid mom out there! Suppers are a challenge with my restrictions and children's fussyness! I thought I was doing OK, but somehow gluten has been in my plate because I feel anemic these days. I use rice caned soups, rice cakes, regular spices. Perhaps these items are contaminated with gluten. I find there just are'nt any shortcuts available for us folks. I read some of the articles posted, and saw that I am not the only person who is blawed with
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Eating does get hard at times. I have been a celiac for a long time so have that one down pat, but now I have diabetes so am working on that one. Every once in awhile I forget what I can eat and what not, what is ok on diabetic diet or what is ok on a celiac one. I did forget one day and did eat a cracker, oh well I was sick, will never forget again that I am a celiac number one. Right now I do not
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Why don't you get the pocket guides that Clan Thompson puts out? It helps with shopping.
You could be doing your body so much harm even without symptoms so you really have to learn quick. I know this is hard. I am in the same boat. I'm really not a good one to talk. I do stay on the celiac diet (15 yrs) but really stuggle with diabetes.
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My soon to be 10 year old daughter takes Hormel ham or smokey turkey to school lunches. They are tiny circled slices (probably made to go with crackers - but of course we don't send crackers!) Anyway, we send several of those and cheddar cheese slices.
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Ginny,
What pocket guides that Clan Thompson puts out are you talking about? My daughter (9 1/2) Rachel was recently diagnosed with celiac, so I am panicked everytime I have to buy something new or different. Just bought OreIda frenchfries cause she loves waffle fries and had seen OreIda was ok in CSA blue handbook. Then I thought I better check for sure and saw that waffle fries weren't in there. Called OreIda. She said it's because they're made at various sights and there could be cross-contamination so they aren't
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Please email me and tell me where to find the tiramisu recipe! I'm new to all this...
Here's a recipe for ladyfingers I use adapted from The Gluten-Free Kitchen. According to their info, each cookie has approximately 3g of carbs, so you could have about 4-5 cookies for a carb choice. Of course, that's the cookies by themselves...
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I saw the recipe for Tiramisu on the celiac list and asked my daughter to make it for me for my birthday. I said I would get the gluten free lady fingers. When I looked at the Dr Schar Savoiardi it had 81 grams of Carb per serving. This won't work. Anyone have any idea what I could use that would not be so high in Carbs?
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Thanks for your responses on Stevia. I got a few saying they are using Stevia but not the brand I mentioned. I did buy it in the health food store yesterday but have not tried it. I've been warned that it is very sweet so I will start with a very small amount.
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Has anyone ever heard of a product called SunnyDew? It is a liquid water based product made from Stevia Rebaubiana combined with Chrysanthemum. They are advertising it as "a dietary supplement that satisfies the basic demand for sweetness, yet does not create a state of imbalance". The name of the company is SunnyDew.
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Hello hun
I use Stevia all the time now and it is wonderful.It is made from that plant called Chrysanthemum. You can read on it at http://www.stevia.com and also my 11 year old daughter who has both diabetes and celiac did a tv interview in January for the Stevia company and CTV National news as we are trying to get stevia allowed in Canada in food already Hope this helps but we love it so far.
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Ginny
I don't know that particular product, but I do know stevia. WE have been using it as a sweetener alternative for about a year now and I wrote an article about it last year.
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http://www.lifescan.com/company/press/profile_letter.html A Letter To LifeScan Customers:
-- URGENT PRODUCT NOTIFICATION ABOUT ONE TOUCH(r) PROFILE(r) METERS -- If you use a ONE TOUCH(r) Profile(r) Blood Glucose Meter (intended for use with ONE TOUCH(r) Brand Test Strips) to test your blood glucose, recommend it to your patients, or distribute and sell it to customers, please take a few moments to read this important announcement.
Copyright 2002 by Michael Jones, Bill Elkus, and Jim Lyles - All rights reserved worldwide.
Permission is granted to copy this document, at no charge and in its entirety, provided that the copies are not used for commercial advantage, that the source is cited, and that this copyright & disclaimer message is included in all copies.
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Merry Christmas everyone.
May this coming year be one filled with much joy and love for you all.
I was sent a wonderful web site with all kinds of recipes and alot of them are low carb and also alot are gluten free. I am printing off as I speak as plan to make a few new things this week. Most of these recipes call for things I already have or can get reasonably easy at the local store..
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Hi. I have recently been diagnosed with celiac (beg. of Aug) And have had diabetes for 16 years. I am still trying to adjust and find it quite difficult as I am trying to graduate college this semester. I am on a pump as that has tremendously helped me along. But simce I have had to go on a gluten-free diet, there have been times where I'll have a reaction to gluten that I was not aware of being in the product.
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Has anyone on this list ever received misinformation from doctors and/or nurses? I have. Maybe this depends on how you define "misinformation." I define it as information that does not work for me--it's wrong for me, it didn't work out. I'm sure it's a good idea to always check with your doctor/diabetic nurse when dealing with complex diet issues, but if we don't each one think for ourselves, we're in big trouble.
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Hi all,
I'm Dana and my 15 yr old son was diagnosed with type 1 diabetes this summer and CD this fall. I've sure learned a lot since then! Jackie, if you can get hold of Bette Hagman's book 'The Gluten-free Gormet Bakes Bread' she has a comparison of all the different flours (well maybe not all but lots) in one of the beginning chapters. It compares carbs, protein, fat, fibre and trace elements. The carbs actually don't vary too much. Wheat is 76% and the range for the other
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For those of you on a celiac diet, it should be noted that the grain items such as breads, etc., if any, that you eat are higher in carbohydrates than the same items made with wheat. This could affect the blood sugars of a diabetic who has not previously been eating such high carb grain items. It sure is a problem for those of us who use carbohydrate restriction to manage our diabetes, as I do. I've been working on a bread recipe using brown rice, amaranth, and soy flour,
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Hi. I'm a mother of three celiacs and we have been following gluten-free diet for about 5 years. This year we have an exchange student living with us who hasa both celiac and diabetes. I signed onto this list to learn more about managing both conditions. But since my initial confirmation information arrived, I have not gotten any postings. I used to get 20 or 30 messages a day from the other list. Is this usual? If anybody has advice/recipes/resources for someone new to managing diabetes, I'd appreciate hearing from
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Hello everyone
I am Jana, Mom to Patricia and she has both diabetes and celiac. She was diabetic at age 2 and possibly also celiac then but for sure by Age 8. We work very hard to help her but she still has alot of troubles. Now she is pumping insulin and that helps some but she still has alot of things that causes swings in blood sugars. One is stress, especially school. Friends hurting or moving away also. Plus being 11 and 5ft 3 and growing leaps and bounds.
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My 9 year old daughter has had Type 1 diabetes for 8 years.
Just a few weeks ago she tested positive for celiac, so unfortunately, I am no great help for gluten free food. Everything I see that is sugar free (candy, cookies, etc.) has ingredients that she can't have because of celiac! Rachel's blood sugar levels are ok in morning, but she is on new insulin called Lantus at bedtime. It is milder than NPH but she can still have cheese stick and microwave popcorn before bed so she
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It could be as simple as more exercise was involved at home that she "burned off" the intake more. Fluid (water, Crystal Light, etc) is important too.
I'm 1 year new at diabetes for my step son (10). My son (9) has been celiac diagnosed 7.5 years. It's not the same as feeding the combination but sure can be interesting meals we have.
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My husband has just been diagnosed as Celiac/Diabetic. This is real interesting. Do you have the blue book from the Celiac Foundation. If not I can email you with their address. If I can be of any help, please let me know. Do you have a support group. I live in Fredericksburg, and the closest one is in Richmond, Va. I will be glad to help in any way.
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Lynn,, Yes, there is not a lot of traffic on this list. ...I have a son who has both, too. Some of my thoughts about your exchange student's blood sugar levels: her diet might be the same, but how is her activity level? Has it changed a lot as well? I would think also that being in a different environment, with different stresses might also affect her sugar levels. Stress, whether positive or negative, can affect blood sugar levels. My son eats the same for the most part as his
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Hi,
I, also, get very few postings compared to the celiac list. It doesn't seem as active.
Perhaps it would be helpful to list the typical diet your exchange student eats. Often the carbohydrate count of gluten free foods is higher than gluten foods, but if she says she is eating the same stuff as before, than it may not be the diet, but need for adjustment in insulin? It's hard to surmise without more information. I would be happy to try to help more with more info.
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Hi everyone
And Hi to Jana Church who I recognise from another list [log in to unmask] I have a 71/2 year old twin daughter who has had diabetes for over two years. She has had problems of slow and delayed food absorption for about 9 months. After researching articles on the web I ask her paediatrician for a blood test for celiac which was positive. The subsequent biopsy was positive too. She has only been on a totally gluten free diet for 2 to 3 weeks now and we are seeing higher
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I have to eat much more protein now. And snacks or little meals. Perhaps a small snack before bed with protein would be helpful if she isn't already doing this. Between giving up wheat and cutting out sodas and much sugar I am controlling my blood sugars without medication. Before giving up wheat, I was very hypoglycemic and borderline diabetic. My doctor was convinced I was type 1 diabetic. But my blood sugar log showed that every time I ate wheat hypo/hyper glycemia resulted. I manage much better now. Good
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I know Extra chewing gum is ok. Any of the diet pops are ok. I drink Diet Mt. Dew. I have type 1 diabetes and was diagnosed Celiac in January. I don't cook (much) and it's real hard for me to find something other than plain old potatoes, rice, veggies and meat. Kroger's carries a wheat free, gluten free spaghetti that is really good. I don't know where you are but I think the brand name is deBoles. I'll check if you're interested in the name. Have you checked the
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Mary,
You said you're from Kansas! We are too! Hays in fact, if you've heard of it! My daughter who is 9 and diabetic tested positive for celiac. However, we've just made appt with specialist in KC for Dec 17th, so haven't officially had biopsy done yet. Nurse said just because bloodwork said high & positive, she may not have celiac. I know her stomach distress though and think she's improving, but know we've not eliminated gluten completely. There are always questionable foods. We're trying. Appreciate any suggestions on brand
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Dear Lynn,
I recently attended a diabetic conference here in Durban. A tip we learned was to try and have a small amount of beans with each meal. (butter beans, kidney beans etc). The beans help to keep the sugar levels steady for a longer period of time.
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I have a husband and 3 children with celiac, 2 of the children have diabetes and I am a diabetes educator.
If Isabel is often high in the am, she should do a 3 am blood sugar check. If her activity level is high, and she is going low in the middle of the night, she might be having frequent rebound highs. That should be checked into that the 3 am readings are the way to do it.
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You should not change diet until after the biopsy is completed. You are potentially giving away the opportunity for an accurate diagnosis if you go gluten free prior to the biopsy.
If that has been done, or partially done already be sure to explain what has been eliminated, and what types of foods your child has been eating before the specialist does the biopsy.
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I realize this is a little late but I have also had to start eating about 6 much smaller meals, and/or about every 3 hours. I at least have to keep some protein in my stomach or I'm in big trouble. Over the past 2 years I have gone from a size 16 to less than a size 12 and with the 14 down in the past year - without trying. This recently landing me in the hospital for a week and out of work on disability for the next
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Jerri, Sorry to hear about your rough road! Glad you are on the right track now. Yeah, I eat about every two hours. I was about to starve to death from not absorbing-malnutrition, while overweight. Then was underweight. Now am pretty stable. You may need B12 shots and folic acid orally while you heal-it takes 6 months to a year for intestine to heal after going strictly gluten free. Have a Merry Christmas and a Happy Joyous and Peaceful 2002 Jerri!!! Annie
Copyright by Michael Jones, Bill Elkus, and Jim Lyles, 2001-2002 - All rights reserved worldwide.
Permission is granted to copy this document, at no charge and in its entirety, provided that the copies are not used for commercial advantage, that the source is cited, and that this copyright & disclaimer message is included in all copies.
Copyright by Michael Jones, Bill Elkus, and Jim Lyles, 2001 - All rights reserved worldwide.
Permission is granted to copy this document, at no charge and in its entirety, provided that the copies are not used for commercial advantage, that the source is cited, and that this copyright & disclaimer message is included in all copies.
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My son was ill with celiac disease for about 4 yrs (as far as we know) before he was diagnosed in September 2000. He has been diabetic since he was 9, he is now 22. His diabetes has been brittle with having high blood sugar a lot. He also was lactose intollerant for a short while after the celiac diagnosis until we knew what was wrong. Now his small intestine appear healthier and he can tollerate dairy produce. He suffered from high blood sugar with ketoacidosis on several occasions without
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Thankyou for your information. I'm still puzzled. Dan never tested his blood sugar regularly so I can't really say what went on but he never had hypos and he must have had celiac disease for 4yrs before it was diagnosed. Since diagnosis he first suffered with lactose intollerance and when that was over diabetic neuropathy. I can't understand why he always must have had high blood sugar. Anyway he is type 1 so maybe there's a difference.
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Thankyou Samantha, So its not my imagination! Also I think he must have eaten some gluten as he has been very ill for two days. This morning's blood sugar was up to 29.7 . I think when he is ill with celiac his problem it also sends his blood sugar up. He has autonomic neuropathy to add to his problems, which the doctors say is because he has poor control of his diabetes and not because of the celiac problem. I'm grateful to you because I find it so hard
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Hi,
When your son's intestines healed, he was able to absorb food better; hence higher blood glucose levels unless he changed all his calculations to reflect this. My husband is T2 and on insulin and found that the increased food absorption increased his insulin needs. When he was at his sickest, celiac-wise, the Drs were praising his LOW hba1cs, not realizing that he wasn't absorbing his food.
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I suppose everyone is different but I have been a celiac (allergic) for 7 years and a type 2 for 2 years. I absolutely have to adhere to a celiac diet and any spikes I have had were never associated with the eating of the prohibited materials. However, I have had highs connected to the injestion of fatty materials, alcohol (and beer in particular) and of course sweets.
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In a message dated 9/3/2001 10:05:11 AM Mountain Daylight Time, [log in to unmask] writes:
> When your son's intestines healed, he was able to absorb food better; hence > higher blood glucose levels unless he changed all his calculations to > reflect this.
Another factor to consider is that most of the GF baked goods are much more carb dense than their gluten filled counterparts . . . For example, the GF breads I've baked range from about 25 to 40 carbs per slice, whereas the regular bread you buy at the
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Hi. Everytime I eat wheat my blood sugar goes up. This is one reason I began to suspect celiac (my dad has it too). Best wishes.
>From: Ann Tingle <[log in to unmask]> > >My son was ill with celiac disease for about 4 yrs (as far as we know) >before he was diagnosed in September 2000. He has been diabetic since he >was 9, he is now 22. His diabetes has been brittle with having high >blood sugar a lot.
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Anne
Have you heard that drinking tonic water can help mitigate the symptoms of an accidental infringement? Because your son has poor control, you can use the sugar free variety (the quinine in the tonic water is what is important) but I really hesitate to recommend to anyone that they use aspartame - especially when they have malabsorption problems.
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Does anyone know whether glucose tablets have gluten? I haven't called the manufacturer, because I'm so sure that they probably have it. I'm thinking of glucose gel-packages?
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I am a type 1 also, and I don't think there is any particular adjustment I've had to make since going gluten-free--just be sure to consider the carbohydrates in the gluten free foods, which are of course different from what you've been used to..
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Rosalie, I copied your post to take to my doctor at the VA as I am trying to get changed from Ultralente and Humalog to Lantis & Humalog. They have to special order mine anyway as they are still giving out NPH & R. At least they give out QID meters now. You had to do a urine test when I first got medically retired from the USAF in 1971. Charles in Charleston, SC T-1 diabetes,DH, CD and psoriasis !
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Pizza -- Its an intereting question. Both my wife and youngest daughter are type I diabetics (I'm type II). Both of them have found that when they eat pizza (well, my daughter now has to have GF pizza) they have to adjust their insulin differently. Both of them are on insulin pumps and use the dual-wave feature which gives two insulin boluses spread out over a period of time. Apparenty the problem with pizza is the rate at which the different ingredients are digested. I have found that using humalog
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Hi Everyone!
I am a type I diabetic on intensive insulin therapy.
Before suspecting I had celiac disease, I noticed that pizza (for example) caused an unexplained increase in my blood glucose levels that didn't seem to make sense based on it's carbohydrate content. I had previously attributed this fact to me miscalculating the amount of carbohydrate it contained. Eventually, I just stopped eating pizza.
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Hi Steve,
I've been a Type I diabetic for 21 years, and on an insulin-pump for 18. The NPH regimine never worked for me, just because I had trouble with the peaking of NPH. I go off the pump for 2 weeks each summer, while on "vacation" in Florida. This year I used the new lantus insulin--which basically operates without peaks--and I really like it. I found it to be closest to the action of a pump. To answer your question, I would want to get on the long acting
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I would wait to switch, but talk over your concerns regarding your basal insulin with your endo. The new insulin Lantus has no peaks to worry about. You might mention that to him/her. Good luck to you. Nancy A. Wynes
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Hi Steven, It seems to me that you have a good handle your carbs, so go ahead and change your insulin regimen. I've been on UltraLente twice a day, even though it's supposed to last a full day.
I'm being diagnosed as well-- The anti-gliadin antibodies were positive, I have malabsorption, and have been losing weight. Now I'm supposed to have an endoscopy/biopsy.
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Hi group,
I am new to this list, and I am wondering how many of you all have problems with skin rashes, in particular, "Durhing's Disease?" I have been type I for 21 years. At age 21, I was diagnosed with a malabsorption syndrome, unknown origin. In the last 6 weeks, I have been experiencing the rash problem, and am being tested for Durhing's. The first biopsy came back negative, but had another 2 days ago. According to the dermatologist, a negative reading still isn't affirmative that I do not
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Dear Lisa,
The company called Schar have an excellent brochure entitled "Dermatitis Herpetiformis - the Duhring disease". To obtain a copy, write to :- Dr Schar S.r.l.
Winkelau 5, 1-39014 Postal (BZ), Italia
Web site:- www.schaer.com
Kind Regards,
Lucille Cholerton (Chairperson, Gluten Intolerance/Coeliac Support Group, Durban, South Africa)
Web Site:- http://www.labspec.co.za/coeliac/index.htm
-----Original Message----- >From: Lisa Spies Swinford <[log in to unmask]> > >Hi group, I am new to this list, and I am wondering how many of you all >have problems with skin rashes, in particular, "Durhing's Disease?" I >have been type I
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I was diagnosed with type 1 diabetes just over two years ago. It seems that I am experiencing many symptoms of celiac disease. I've gone to my doctor and he have me a requisition for an anti-gliaden blood test.
I've only been on a GF diet for just over a week, and I feel better than I have in a year (or two).
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Steve
If I recall my info correctly, you have not been GF long enough for the antibodies to gluten to have cleared your system. I think it takes about three months. I wouldn't worry about it, but if you get a negative and feel it necessary to have a "for sure" diagnosis, you could ask the doctor to repeat it in three months.
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I think the short answer is yes as long as you are sure that you will not suffer much. Or die. :-) Other questions from a newbie might be, where are the unexpected places I might find gluten? Followed by, what in the heck can I eat for lunch?
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Steven, I think that you have not been on a glutenfree diet long enough to jeopardize the tests, but would highly suggest that you go back to eating gluten. I have read that one can have these antibody tests once one has been on a glutenfree diet to see if one is accidently eating gluten.. If one has not been, then the antibodies should be at their normal level. One of my sons' test showed high levels of antibodies, and he had the most severe of the symptoms. He was
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I suggest that if you have time you join one of the groups at yahoogroups like glutenfreekitchen or GFCFrecipes. There is a wealth of information in the archives of both. I might also suggest you look at places like www.newdiet.com which has some awesome recipes (mine included - grin).
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I just wanted to thank everyone who responded to my concerns. I was very uncertain and scared and you all helped me a great deal. The following is a summary of the information I received.
1. GF foods are denser, therefore, have much higher carbohydrate counts
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I'm not sure what that term means. I have been an insulin-dependent diabetic for 31 years now, and although I have not been diagnosed as celiac, I do have trouble with foods containing gluten and so I avoid them. My use of insulin certainly has changed over the years, but until recently, I too was using NPH and Regular. Then I stopped Regular and began using Humalog. About a month ago, I began Lantus instead of NPH with the Humalog, and I just love it. For many years I've had
Copyright by Michael Jones, Bill Elkus, and Jim Lyles, 2001 - All rights reserved worldwide.
Permission is granted to copy this document, at no charge and in its entirety, provided that the copies are not used for commercial advantage, that the source is cited, and that this copyright & disclaimer message is included in all copies.
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Have any of you tried or are currently using intensive insulin therapy and counting carbohydrates? When you started, did you have trouble concerning how many grams of carbohydates were in your gluten-free products? Does anyone have any information that will help me? I am on day number 3 of the intensive insulin therapy and keep going over and under on my carbohydrates. I am a brittle diabetic in the first place and my blood sugars are still all over the place. Thanks for your assistance! I am extremely frustrated and
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My daughter is 11 and has both diabetes and celiac disease. We do carb counting as well. She was always brittle and did the intensive insulin therapy and still had some troubles but she now uses the pump, so we are able to control much better and are far more successful most of the time.
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We've found that nearly all of the gluten free baked goods (bread, bagels, cookies, etc.) have much higher carb counts than their gluten-filled counterparts . . . You really need to look at the nutritional labels (for packaged foods) or calculate the carbs in a serving (for your "from scratch" foods) for yourself -- Using the standard estimates (that they teach to those with diabetes) for one slice of bread, one cookie, one medium bagel, just won't work with the gluten-free items . . . also, using a digital scale
Copyright by Michael Jones, Bill Elkus, and Jim Lyles, 2001 - All rights reserved worldwide.
Permission is granted to copy this document, at no charge and in its entirety, provided that the copies are not used for commercial advantage, that the source is cited, and that this copyright & disclaimer message is included in all copies.
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I just found out I have diabetes in September. I have been diagnosed with celiac for about 14 yrs.
I was put on medication and then a second medication when that did not work. After that I ended up on insulin 4 times a day. The endocrinologist that put me on insulin felt it might be Type 1 but was not sure.
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When my son became diabetic at nine years old, he was diagnosed very early. He was prescribed insulin for a short while and then it appeared that he went through a phase of not needing insulin. The doctors called it a honeymoon period. He then needed insulin again. As you are older I'm not sure this would apply to you but I thought you may be interested. My son and husband have type 1 diabetes. Both became diabetic about the same age.
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The test you need is called a C-Peptide test to let your Dr. know if you produce insulin. It sounds like you had a hemoglobin AIC done which just shows your control within the last few months. It doesn't indicate which type of diabetes you have. If you are over weight, the chances are greater that it could be type 2 diabetes...but is not conclusive. Type ! is an auto-immune disease and that can be associated with celiac.
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Type 1 cannot survive without daily insulin injections or equivalent. You need to be really certain you're a Type 2 before proceeding with this treatment. Personally I'd be very leery of a doctor willing to take you off insulin without positive proof you are not Type 1.
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I guess I should have explained more yesterday. I am no where near being over weight.
I called the lab to find out more about this test they are calling insulin. He told me what my doctor said. It is to test to see if I am producing insulin. It is not a hemoglobin A/C.
